Comparison Between Helpful and Missing Resources Identified by Patients with End-Stage Liver Disease and Their Caregivers: A Content Analysis †.
Patients with end-stage liver disease (ESLD) and their caregivers experience extensive physical, psychological, and social burdens and needs for resources. However, empirical evidence on patients' and caregivers' specific reported use of resources to help manage ESLD is lacking. Understanding the ty...
| Published in: | Nursing Reports Vol. 16; no. 3; pp. 95 - 116 |
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| Main Authors: | , , , , |
| Format: | research tables/charts Journal Article |
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MDPI
Mar2026
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=192635870&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 192635870 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 2039439X EGNT jtl: Nursing Reports issn: 2039439X maglogo: N pubinfo: dt: Mar2026 vid: 16 iid: 3 pid: 97109 pub: MDPI artinfo: ui: 192635870 192635870 192635870 10.3390/nursrep16030095 192635870 ppf: 95 ppct: 21 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Comparison Between Helpful and Missing Resources Identified by Patients with End-Stage Liver Disease and Their Caregivers: A Content Analysis †. aug: au: Rosenkranz, Susan J. Hiatt, Shirin O. Leatherwood, Amy Chang, Michael F. Hansen, Lissi affil: School of Nursing, Oregon Health & Science University, 3455 S.W. U.S. Veterans Hospital Rd. Portland, OR 97239, USA sug: subj: Liver Failure Therapy Caregivers Psychosocial Factors Health Services Needs and Demand Evaluation Health Resource Utilization Evaluation Funding Source Human Male Female Middle Age Aged Qualitative Studies Prospective Studies Content Analysis Data Analysis Software Palliative Care Support, Social Severity of Illness Needs Assessment Questionnaires Middle Aged: 45-64 years Aged: 65+ years Male Female ab: Patients with end-stage liver disease (ESLD) and their caregivers experience extensive physical, psychological, and social burdens and needs for resources. However, empirical evidence on patients' and caregivers' specific reported use of resources to help manage ESLD is lacking. Understanding the type and helpfulness of resources used could strengthen clinical care to address individual needs for resources. Aim: To examine and compare resources patients and caregivers identified as being most helpful in managing ESLD in relation to resources they felt would be helpful. Methods: Patients with ESLD and their caregivers responded in writing to two open-ended questions as part of a survey: (1) What resources have you found most helpful in dealing with patient's liver disease? and (2) What resources would be helpful in dealing with patient's liver disease? Conventional content analysis was used to identify resource categories. Results: A total of 192 patients and 198 caregivers completed surveys. We identified two major resource domains—medical and non-medical—and five categories within each. Analysis revealed participant group- and disease severity-based differences in helpful resources. Conclusions: Proactively engaging patients and caregivers early in the course of illness to identify relevant resources that might facilitate ability to manage ESLD. An interprofessional care approach would facilitate efforts supporting financial, social, spiritual, emotional, and mental health needs. Future longitudinal research of unique resource needs along the disease trajectory may help to develop effective interventions. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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