Enhancing Interpretability of Patient-Reported Outcomes Measurement Information System (PROMIS) and Related Measures in Rehabilitation Populations: A Systematic Review of Clinical and Research Applications.

To evaluate and synthesize interpretability metrics, including minimal important change (MIC), minimal important difference (MID), and minimal detectable change (MDC), across Patient-Reported Outcomes Measurement Information System (PROMIS) and related systems (Quality of Life in Neurological Disord...

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Publicado en:Archives of Physical Medicine & Rehabilitation Vol. 107; no. 4; pp. 778 - 784
Autores principales: Alhasani, Rehab, Ataman, Rebecca, Nafees, Zanib, Luong, Anita, Auneau-Enjalber, Line, Quigley, Adria, Michael, Henry Ukachukwu, Ahmed, Sara
Formato: research systematic review Journal Article
Publicado: W B Saunders Apr2026
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Apr2026
      vid: 107
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      pub: W B Saunders
      place: Philadelphia, Pennsylvania
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        192817479
        10.1016/j.apmr.2025.11.017
        192817479
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        atl: Enhancing Interpretability of Patient-Reported Outcomes Measurement Information System (PROMIS) and Related Measures in Rehabilitation Populations: A Systematic Review of Clinical and Research Applications.
      aug:
        au:
          Alhasani, Rehab
          Ataman, Rebecca
          Nafees, Zanib
          Luong, Anita
          Auneau-Enjalber, Line
          Quigley, Adria
          Michael, Henry Ukachukwu
          Ahmed, Sara
        affil: School of Physical and Occupational Therapy, McGill University, Montréal, Québec, Canada
      sug:
        subj:
          Patient-Reported Outcomes
          Information Systems
          Quality of Life
          Brain Injuries Rehabilitation
          Spinal Cord Injuries Rehabilitation
          Nervous System Diseases Rehabilitation
          Human
          Systematic Review
          Medline
          Embase
          Psycinfo
          CINAHL Database
          Cochrane Library
          Referral and Consultation
          Consensus
          Depression
          Anxiety
          Fatigue
          Patient Centered Care
          Professional Practice, Evidence-Based
      ab: To evaluate and synthesize interpretability metrics, including minimal important change (MIC), minimal important difference (MID), and minimal detectable change (MDC), across Patient-Reported Outcomes Measurement Information System (PROMIS) and related systems (Quality of Life in Neurological Disorders [Neuro-QoL], Quality of Life in Traumatic Brain Injury [TBI-QoL], Quality of Life in Spinal Cord Injury [SCI-QoL]) in rehabilitation populations. Comprehensive searches of electronic databases (MEDLINE, EMBASE, PsycINFO, HaPI, CINAHL, Cochrane Library, Web of Science) and clinical trial registries (ISRCTN Registry, ClinicalTrials.gov) were conducted from inception through March 23, 2024, in consultation with an information specialist. Eligible studies assessed interpretability metrics in rehabilitation populations using PROMIS, Neuro-QoL, TBI-QoL, or SCI-QoL. Studies of pediatric or nonrehabilitation populations, abstracts, posters, or consensus statements were excluded. A total of 202 studies met inclusion criteria. Two independent reviewers extracted study characteristics, interpretability metrics, and analytical methods following COnsensus-based Standards for the Selection of Health Measurement Instruments guidelines. MIC, MID, and MDC values varied widely across populations and domains. PROMIS mental health domains (eg, depression, anxiety, fatigue) demonstrated relatively consistent estimates, whereas physical function domains were more variable, particularly in chronic and geriatric groups. PROMIS Computer Adaptive Testing measures showed fewer floor and ceiling effects than short forms, indicating enhanced sensitivity to change. Limited data were available for SCI-QoL and TBI-QoL. Standardizing interpretability metrics and expanding research on SCI-QoL and TBI-QoL are critical to improving the clinical utility of these measures in rehabilitation. Future work should incorporate response-shift considerations and establish population-specific cut-points to support patient-centered care and evidence-based practice.
      pubtype: Academic Journal
      doctype:
        research
        systematic review
        Journal Article
      ougenre: Article
    language: English
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