The development of the European Toolkit for the self-assessment of quality of life across the cancer care continuum (EUonQoL-Kit).
The European Oncology Quality of Life (EUonQoL) project aims to develop a questionnaire toolkit (EUonQoL-Kit) to assess the quality of life (QoL) of cancer patients and survivors across Europe. The EUonQoL-Kit development used mixed-methods and a co-design approach. Data was collected in six countri...
| Publicado en: | European Journal of Cancer Vol. 238 |
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| Autores principales: | , , , , , , , , , , , , , , , , , , , |
| Formato: | research Journal Article |
| Publicado: |
Pergamon Press - An Imprint of Elsevier Science
May2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=192839884&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 192839884 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09598049 1VW jtl: European Journal of Cancer issn: 09598049 maglogo: N pubinfo: dt: May2026 vid: 238 pid: 2410 pub: Pergamon Press - An Imprint of Elsevier Science artinfo: ui: 192839884 192839884 192839884 10.1016/j.ejca.2026.116677 192839884 ppct: 1 formats: tig: atl: The development of the European Toolkit for the self-assessment of quality of life across the cancer care continuum (EUonQoL-Kit). aug: au: Nicklin, Emma Bedding, Christopher Alfieri, Sara Apolone, Giovanni Arndt, Volker Bos, Nanne Bredart, Anne Brunelli, Cinzia Caselli, Luana Ciliberto, Gennaro Rojas-Concha, Leslye Couespel, Norbert Doege, Daniela Ferrer, Montse Franzoi, Maria Alice Gangeri, Laura Garin, Olatz Gillanders, Emma Groenvold, Mogens Higgins, Caitriona affil: Leeds Institute of Medical Research at St James's, University of Leeds, Leeds, United Kingdom sug: subj: Instrument Construction Questionnaires Quality of Life Evaluation Cancer Patients Psychosocial Factors Cancer Survivors Psychosocial Factors Human Female Male Europe Multimethod Studies Palliative Care Models, Theoretical Conceptual Framework Semi-Structured Interview Delphi Technique Computerized Adaptive Testing Health Status Psychological Well-Being Usability Study Health Policy Descriptive Statistics Female Male ab: The European Oncology Quality of Life (EUonQoL) project aims to develop a questionnaire toolkit (EUonQoL-Kit) to assess the quality of life (QoL) of cancer patients and survivors across Europe. The EUonQoL-Kit development used mixed-methods and a co-design approach. Data was collected in six countries (Denmark, France, Germany, Italy, Netherlands and UK). The target populations were patients in active treatment (A), survivors (B) and patients requiring palliative care (C). A review of existing QoL theoretical models produced an initial EUonQoL conceptual framework. Semi-structured interviews and a Delphi survey evaluated/modified the framework. Existing validated items were used to construct the toolkit, including Computer Adaptive Testing (CAT), where available. A usability study evaluated EUonQoL-Kit.v1. Data triangulation and consensus methodology guided EUonQoL-Kit.v2. The initial conceptual framework covered four multi-dimensional domains: physical, social and overall health, and psychological wellbeing. The interviews and Delphi survey included 75 and 155 participants, respectively. The domain 'healthcare experience' was identified and included in the framework. EUonQoL-Kit.v1 resulted in three static questionnaires, one for each target population (n items- A=75; B=67; C=79). Following usability testing with 53 participants, EUonQoL-Kit.v2 was produced via a multi-stakeholder consensus development panel, creating a shortened version (n items- A=50; B=50; C=44). Dynamic versions of these questionnaires were developed using the EORTC CAT Core system. EUonQoL-Kit is a novel toolkit developed to assess QoL across the cancer continuum and inform health policy within Europe. Its psychometric properties are currently being evaluated using data collected on more than 4200 patients across 32 countries. • The EUonQoL-Kit is a novel way to assess QoL and inform future EU cancer policies. • Over 277 patients, survivors and HCPs, from 6 countries developed the EUonQoL-Kit. • The EUonQoL-Kit was developed for static and dynamic assessment using CAT. • EUonQoL-Kit.v2 is being evaluated in 4200 + patients/survivors across 32 countries. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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