Measuring patient experience of integrated care in multiple sclerosis: development and validation of the Integrated Care Experience Scale (ICES-MS).
People with multiple sclerosis (MS) need to receive health and social care services from a diverse range of provider organizations, which carries risks such as disjointed care, discontinuities, and duplication. Many innovation programmes aim to provide better integrated and person-centred care (IPCC...
| Publicado en: | European Journal of Public Health Vol. 36; no. 2; pp. 1 - 8 |
|---|---|
| Autores principales: | , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Oxford University Press / USA
Apr2026
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=193017656&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 193017656 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 11011262 BHW jtl: European Journal of Public Health issn: 11011262 maglogo: N pubinfo: dt: Apr2026 vid: 36 iid: 2 pid: 622 pub: Oxford University Press / USA artinfo: ui: 193017656 193017656 193017656 10.1093/eurpub/ckaf191 193017656 ppf: 1 ppct: 7 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Measuring patient experience of integrated care in multiple sclerosis: development and validation of the Integrated Care Experience Scale (ICES-MS). aug: au: Manacorda, Tommaso Bandiera, Paolo Lamendola, Piero Salivetto, Marco Terzuoli, Federica Battaglia, Mario A Ponzio, Michela affil: Italian Multiple Sclerosis Association (AISM), Genoa, Italy sug: subj: Reliability and Validity Instrument Construction Instrument Validation Psychometrics Evaluation Scales Health Care Delivery, Integrated Standards Patient Attitudes Evaluation Multiple Sclerosis Therapy Human Funding Source Male Female Adult Middle Age Aged Italy Validation Studies Factor Analysis Questionnaires Quality of Life Patient Satisfaction Patient Centered Care Support, Social Aging Cross Sectional Studies Interviews Descriptive Statistics Comparative Studies Summated Rating Scaling Transcultural Care Data Analysis Software Mann-Whitney U Test Kruskal-Wallis Test Post Hoc Analysis Construct Validity Coefficient alpha Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Male Female ab: People with multiple sclerosis (MS) need to receive health and social care services from a diverse range of provider organizations, which carries risks such as disjointed care, discontinuities, and duplication. Many innovation programmes aim to provide better integrated and person-centred care (IPCC) for people with chronic conditions, including MS. Measuring patient experience is essential to evaluate interventions meant to shift the service model towards coordinated and personalized care. These transformations are central to global strategies for addressing the needs of ageing populations. AISM—Italian MS Association adapted an 8-item questionnaire, ICES-MS, from a set of questions originally designed for chronic patients in general. A total of 1602 persons with MS living in Italy completed the ICES-MS as a part of a broader survey that included other validated questionnaires on disability (Self-EDSS) and quality of life (EQ-5D-3L and EQ-VAS). Participants' responses were also linked with data from a previous AISM survey on 169 Italian Clinical Centres. Structural, construct, criterion, and known-groups validity of ICES-MS were evaluated. The ICES-MS scale is a robust unidimensional measure of patient experience of IPCC in MS, with strong internal consistency and appropriate convergent validity with EQ-5D-3L and EQ-VAS. ICES-MS scores varied as expected by participants' age and disability level. ICES-MS is a valid, succinct scale to measure patient experience of IPCC care in MS in Italy, and its original design suggests value in exploring its use in other chronic conditions and different countries. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|