An examination of how patient and public involvement is used and valued in the clinical research approval process.
Clinical research is crucial in enhancing patient care and developing new treatments in all healthcare settings. Patient and public involvement (PPI) is an essential element of the clinical research process that ensures patients and members of the public are involved in the design and delivery of an...
| Publicado en: | British Journal of Nursing Vol. 35; no. 8; pp. 406 - 413 |
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| Autores principales: | , , , , , |
| Formato: | research Journal Article |
| Publicado: |
Mark Allen Holdings Limited
4/16/2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=193061051&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 193061051 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09660461 GHD jtl: British Journal of Nursing issn: 09660461 maglogo: N pubinfo: dt: 4/16/2026 vid: 35 iid: 8 pid: 11383 pub: Mark Allen Holdings Limited artinfo: ui: 193061051 193061051 193061051 10.12968/bjon.2025.0262 193061051 ppf: 406 ppct: 7 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: An examination of how patient and public involvement is used and valued in the clinical research approval process. aug: au: Hood, Ben Bojke, Andy Cooper, Catherine Curtis, Lesley Sellers, Sharon Cruickshank, William affil: Cancer Research Nurse Consultant, Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne sug: subj: Clinical Research United Kingdom Cancer Patients Psychosocial Factors Patient Participation Utilization Consumer Participation Utilization Research Subjects Psychosocial Factors Patient Attitudes Evaluation Public Opinion Evaluation Patient Participation Standards Consumer Participation Standards Human United Kingdom Research Ethics Semi-Structured Interview Thematic Analysis Data Analysis Software Qualitative Studies Altruism Accountability Researcher-Subject Relations Feedback Health Knowledge Funding Source Institutional Review Documentation ab: Clinical research is crucial in enhancing patient care and developing new treatments in all healthcare settings. Patient and public involvement (PPI) is an essential element of the clinical research process that ensures patients and members of the public are involved in the design and delivery of any research. This article examines data collected from the DANIELLE study, a research project that aimed to review how PPI is currently used and valued within clinical research in the UK, with the aim of creating proposals for improving how PPI is employed in the future. The initial concept for this research was developed in response to the PPI group's experiences of reviewing clinical research studies over a 10-year period. The objective of this research was to explore the lived experiences of members of a cancer PPI group. Semi-structured interviews were used to examine the lived experience of PPI group members. Findings from this study suggest researchers need a stronger set of terms of reference for how they act and engage with PPI groups. PPI is promoted as being essential to the research approval process, however, this study raises questions around the legitimacy of how researchers use PPI feedback, and the legitimacy of how it is verified within current research approval process. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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