Exploring the lived experiences of patients with fibromyalgia in the United Kingdom: a study of patient-general practitioner communication.
Objective: Fibromyalgia is often viewed as a contested illness, with individuals facing scepticism from healthcare providers, which can hinder their diagnostic and treatment experiences. This study aimed to explore the lived experiences of individuals with fibromyalgia in the United Kingdom, focusin...
| Publicado en: | Psychology & Health Vol. 41; no. 5; pp. 717 - 739 |
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| Autores principales: | , |
| Formato: | questionnaire/scale research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
May2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=193251221&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 193251221 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 08870446 7WK jtl: Psychology & Health issn: 08870446 maglogo: N pubinfo: dt: May2026 vid: 41 iid: 5 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 193251221 183474236 193251221 193251221 10.1080/08870446.2025.2474013 193251221 ppf: 717 ppct: 22 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Exploring the lived experiences of patients with fibromyalgia in the United Kingdom: a study of patient-general practitioner communication. aug: au: Maher, Crystal Gaffiero, Daniel affil: Department of Health, Psychology and Social Care, University of Derby, Derby, UK sug: subj: Fibromyalgia Therapy Life Experiences Evaluation Physician-Patient Relations Evaluation Human Male Female Adult Middle Age United Kingdom Qualitative Studies Phenomenological Research Epistemology Semi-Structured Interview Audiorecording Adult: 19-44 years Middle Aged: 45-64 years Male Female ab: Objective: Fibromyalgia is often viewed as a contested illness, with individuals facing scepticism from healthcare providers, which can hinder their diagnostic and treatment experiences. This study aimed to explore the lived experiences of individuals with fibromyalgia in the United Kingdom, focusing on their interactions with general practitioners. Materials and methods: Six participants (one male, five females; mean age, 44.0 ± 13.7 years), all formally diagnosed with fibromyalgia, were recruited via social media. Interpretative Phenomenological Analysis was used to analyse the data, enabling the interpretation of participants' nuanced experiences. Semi-structured interviews were conducted to gather detailed accounts of their diagnosis, treatment, and communication experiences. Results: Two primary themes emerged from the analysis. 'Challenges in obtaining accurate diagnosis and adequate treatment', reflected participants' feelings of invalidation and including sub-themes of 'medical mystery and misdiagnosis' and 'sex bias in healthcare'. 'Importance of trust in fibromyalgia management', highlighted the crucial role of trust in improving care, with sub-themes of 'positive impact of active listening' and 'improved trust over time'. Conclusion: This study highlights the need for a more patient-centred, compassionate, and collaborative approach to fibromyalgia management. Addressing trust, diagnostic accuracy, and sex bias may lead to better overall outcomes for fibromyalgia patients. pubtype: Academic Journal doctype: questionnaire/scale research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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