Progress Through Engagement: A Systematic Review and Thematic Synthesis of Qualitative Community‐Based Participatory Research in Vision Impairment.
Background: Vision impairment (VI) presents complex challenges that extend beyond clinical measures, affecting individuals' mental health, social participation and quality of life. Traditional research often overlooks these lived realities, prompting a growing interest in community‐based participato...
| Publicado en: | Health Expectations Vol. 29; no. 2; pp. 1 - 21 |
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| Autores principales: | , , , |
| Formato: | research systematic review tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Apr2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=193365361&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 193365361 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Apr2026 vid: 29 iid: 2 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 193365361 193365361 193365361 10.1111/hex.70640 193365361 ppf: 1 ppct: 20 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: Progress Through Engagement: A Systematic Review and Thematic Synthesis of Qualitative Community‐Based Participatory Research in Vision Impairment. aug: au: Tavoulari, Aikaterini Kidwai, Jibraan Proulx, Michael J. Petrini, Karin affil: Department of Psychology, University of Bath, Bath, UK sug: subj: Vision Disorders Action Research Social Participation Community Health Services Qualitative Studies Persons with Visual Disabilities Human Systematic Review Cultural Diversity Photography Narratives Storytelling Focus Groups Creativeness Seminars and Workshops Thematic Analysis Health Services Accessibility Embase Cochrane Library Psycinfo Checklists Funding Source ERIC Database PubMed Medline CINAHL Database ab: Background: Vision impairment (VI) presents complex challenges that extend beyond clinical measures, affecting individuals' mental health, social participation and quality of life. Traditional research often overlooks these lived realities, prompting a growing interest in community‐based participatory research (CBPR) as a more inclusive and impactful approach. Methods: This systematic review examines the scope, frequency and methodological characteristics of CBPR studies involving people with VI, with a focus on qualitative research published between 1993 and 2024. Following PRISMA guidelines and PROSPERO registration, included studies were identified across diverse cultural contexts and participatory depths, from consultation to collaboration and user‐driven design. Using a dual‐stage thematic synthesis, we explored both the methodological approaches ('how') and the substantive content themes ('what') addressed in these studies. Participatory methods included photography and narrative storytelling, focus groups, creative workshops and final consultations, with many studies employing methodological triangulation. Although the search covered the period 1993–2024, all included studies were published between 2014 and 2024, reflecting the recent emergence of CBPR approaches in VI research. Results: Twelve studies met the inclusion criteria and were included in the final synthesis. Thematic findings revealed barriers to accessibility, cultural misalignment in interventions and the importance of user‐led adaptation strategies, showing that despite growing interest, CBPR remains underutilised in VI research. Conclusion: This review highlights its potential to bridge gaps between clinical innovation and lived experience, offering a roadmap for more equitable, context‐sensitive and user‐centred research practices. Patient or Public Contribution: Patients and members of the public were not directly involved in the design, conduct, or analysis of this systematic literature review. Instead, the study focus and synthesis were informed by documented experiences of people with vision impairment, derived from community‐based participatory studies, which contributed to the development of patient‐centred health material design. pubtype: Academic Journal doctype: research systematic review tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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