A Youth‐Led Evaluation of Adolescent Involvement in a Project on Development of Guidelines for Adolescent Involvement in Health Research.
Background: Adolescent involvement in health research has numerous benefits for the research, researchers, and the adolescents involved. However, evidence on the impacts of adolescent involvement in health research is anecdotal and subjective, relying on informal reflections rather than prospectivel...
| Publicado en: | Health Expectations Vol. 29; no. 2; pp. 1 - 13 |
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| Autores principales: | , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Apr2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=193365366&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 193365366 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Apr2026 vid: 29 iid: 2 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 193365366 193365366 193365366 10.1111/hex.70645 193365366 ppf: 1 ppct: 12 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: A Youth‐Led Evaluation of Adolescent Involvement in a Project on Development of Guidelines for Adolescent Involvement in Health Research. aug: au: Moore, Katherine Wacker, Ciara Hadfield, Kristin Warraitch, Azza affil: Universitat Autònoma de Barcelona (UAB), Barcelona, Spain sug: subj: Health Services Research Documentation Consumer Participation Psychosocial Factors Research Personnel Health Knowledge Evaluation Skill Acquisition Evaluation Authorship Financial Support Human Semi-Structured Interview Thematic Analysis Change Theory Conceptual Framework Motivation Career Planning and Development Role Interpersonal Relations Data Analysis Software Communication Male Female Adolescence Young Adult Students, Undergraduate Students, Graduate Ireland Decision Making Autonomy Learning Funding Source Adolescent: 13-18 years Male Female ab: Background: Adolescent involvement in health research has numerous benefits for the research, researchers, and the adolescents involved. However, evidence on the impacts of adolescent involvement in health research is anecdotal and subjective, relying on informal reflections rather than prospectively planned and rigorous evaluations. These limitations of the current evidence base highlight the need for more structured and prospectively planned evaluations of adolescent involvement in health research. To achieve this, we explored how adolescent co‐researchers involved in a guideline development project experienced their involvement, what facilitated their sustained participation, what outcomes resulted, and how specific engagement practices may have contributed to these outcomes. Methods: This evaluation was co‐designed and led by trained adolescent co‐researchers. Semi‐structured interviews were conducted with five adolescent co‐researchers involved in a guideline development project. Reflexive thematic analysis was conducted to analyse the data. Emerging themes were mapped onto the Youth Engagement Framework. To build a theory of change, we used the Public Involvement Impact Assessment Framework to trace how initial motivations, engagement practices, and contextual barriers contributed to observed outcomes. Results: Findings are organised around four key themes: initiators, qualities of engagement process, sustainers, and outcomes of the involvement process. Adolescent co‐researchers reported being motivated by opportunities for skill development, career growth, and roles aligned with their interests, and highlighted the role of supportive involvement practices in sustaining their involvement. They shared some predominantly positive outcomes from their involvement, including enhanced research knowledge and skills, co‐authorship opportunities, financial compensation, and strengthened relationships with the research team. Conclusion: Adolescent engagement is shaped not just by individual motivation, but also by social and institutional factors, indicating the need for system‐level changes to enable meaningful and equitable involvement. To maximise benefits, researchers should tailor involvement processes to adolescents' needs, supported by a clear theory of change. Public and Patient Involvement: This evaluation was co‐designed with adolescents and led by a trained adolescent co‐researcher. Three young people (aged 17–24) were involved at different stages of the study. One acted as a consultant during the study design phase, helping to define the evaluation framework and refine interview guides. The others were hired as co‐researchers to support data collection and analysis. The lead adolescent co‐researcher conducted interviews, proofread transcripts, supported coding and theme development, and contributed to manuscript drafting. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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