'It Simply Required Far Too Many Steps and Made You Feel You Were Just a Number'. Family Caregivers' Experiences With Assisted Suicide in Austria: A Qualitative Study.
Introduction: This study examines the lived experiences of family caregivers navigating the legal and emotional complexities of Austria's newly enacted Dying Decree Law. Methods: A qualitative interview study was conducted with nine family caregivers (eight women) of people seeking assisted suicide...
| Publicado en: | Health Expectations Vol. 29; no. 2; pp. 1 - 12 |
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| Autores principales: | , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Apr2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=193365372&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 193365372 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Apr2026 vid: 29 iid: 2 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 193365372 193365372 193365372 10.1111/hex.70651 193365372 ppf: 1 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: 'It Simply Required Far Too Many Steps and Made You Feel You Were Just a Number'. Family Caregivers' Experiences With Assisted Suicide in Austria: A Qualitative Study. aug: au: Vielgrader, Tamina‐Laetitia Mewes, Ricarda Fischer, Julia Hluch, Jana Marica Kletecka‐Pulker, Maria Kreye, Gudrun Zeilinger, Elisabeth Lucia affil: Institute for Ethics and Law in Medicine, University of Vienna and Medical University of Vienna, Vienna, Austria sug: subj: Caregivers Psychosocial Factors Suicide, Assisted Legislation and Jurisprudence Life Experiences Caregiver Attitudes Evaluation Human Austria Qualitative Studies Purposive Sample Thematic Analysis Semi-Structured Interview Grief Prevention and Control Emotions Support, Psychosocial Family Phenomenological Research Funding Source ab: Introduction: This study examines the lived experiences of family caregivers navigating the legal and emotional complexities of Austria's newly enacted Dying Decree Law. Methods: A qualitative interview study was conducted with nine family caregivers (eight women) of people seeking assisted suicide (PSAS) in Austria. Participants were recruited through purposive sampling through multiple recruitment channels. Interviews were analysed using thematic analysis (supported by MAXQDA). Results: Seven overarching themes emerged: (1) Dynamics of Dying and Saying Goodbye; (2) Inclusion versus Exclusion in the Decision‐Making Process; (3) Role Negotiation and Responsibilities; (4) Bureaucratic and Legal Barriers; (5) Social Exclusion and Stigmatisation; (6) Support Needs and Structures; and (7) Ramifications in the Post‐Mortem Phase. Family caregivers reported a lack of formal guidance, often leading to isolation and exhaustion. Open communication was repeatedly highlighted as essential in order to honour the PSAS's wishes and alleviate family caregivers' grief. Conclusion: Family caregivers function as advocates and bureaucratic managers while simultaneously serving as carers who provide the PSAS with physical and emotional support. Rather than relying on the legal framework alone, public policy should also formally acknowledge this dual role and deliver government‑led structural support for family caregivers to lessen their emotional and bureaucratic burden. Patient or Public Contribution: Family caregivers of PSAS were central to this research. We interviewed family caregivers about their experiences with assisted dying under Austria's Dying Decree Law, and incorporated their suggestions for addressing the identified challenges and improving support structures. Their contributions were integral to the study's findings and its focus on enhancing support structures for family caregivers within assisted dying systems. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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