Co‐Designing Lung Cancer Rehabilitation Services for People Treated With Immunotherapy.

Background: Immunotherapy has rapidly become part of lung cancer care, however the ability of people to participate in rehabilitation in conjunction with immunotherapy remains largely unknown. The aims of this study were to (a) understand stakeholder perspectives of lung cancer immunotherapy treatme...

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Publicado en:Health Expectations Vol. 29; no. 2; pp. 1 - 14
Autores principales: Edbrooke, Lara, Pearson, Elizabeth, Granger, Catherine L., Denehy, Linda
Formato: pictorial research tables/charts Journal Article
Publicado: Wiley-Blackwell Apr2026
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Apr2026
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      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        atl: Co‐Designing Lung Cancer Rehabilitation Services for People Treated With Immunotherapy.
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        au:
          Edbrooke, Lara
          Pearson, Elizabeth
          Granger, Catherine L.
          Denehy, Linda
        affil: Department of Physiotherapy, The University of Melbourne, Melbourne, Australia
      sug:
        subj:
          Lung Neoplasms Rehabilitation
          Immunotherapy
          Patient Attitudes Evaluation
          Caregiver Attitudes Evaluation
          Attitude of Health Personnel Evaluation
          Program Development
          Funding Source
          Human
          Male
          Female
          Middle Age
          Aged
          Qualitative Studies
          Cancer Patients
          Interviews
          Audiorecording
          Videorecording
          Field Notes
          Thematic Analysis
          Health Information
          Health Services Accessibility
          Patient Centered Care
          Patient Education
          Home Health Care
          Aerobic Exercises
          Muscle Strengthening
          Nutritional Assessment
          Middle Aged: 45-64 years
          Aged: 65+ years
          Male
          Female
      ab: Background: Immunotherapy has rapidly become part of lung cancer care, however the ability of people to participate in rehabilitation in conjunction with immunotherapy remains largely unknown. The aims of this study were to (a) understand stakeholder perspectives of lung cancer immunotherapy treatment and (b) co‐design a rehabilitation programme for people with lung cancer during and following immunotherapy. Methods: Experience‐based co‐design, involving three distinct online phases: (1) patient, carer and healthcare professional interviews to understand immunotherapy and rehabilitation experiences; (2) separate workshops for healthcare professionals and patients/carers, to identify priority areas for future rehabilitation programme design; and (3) combined workshops to refine the draft programme. Transcripts were analysed by two researchers, guided by the Consolidated Framework for Implementation Research. Results: Seventeen stakeholders were involved in the interviews and/or workshops: seven patients, one carer and nine exercise healthcare professionals. Key themes included: immunotherapy side effects varied but were generally more tolerable than chemotherapy; rehabilitation information was lacking, and access varied; healthcare professional training in immunotherapy was limited. Rehabilitation enablers included supervision and monitoring from healthcare professionals with expertise in cancer; routine rehabilitation discussion with oncologists and nurses; dedicated funding. Lack of education about symptom control when exercising was a barrier for patients. Essential rehabilitation elements included individualised programmes, group‐based, flexibility for centre‐ or home‐based programmes. Programme components included education, aerobic and strength exercise and screening for nutrition and psychology needs. Conclusions: This research has furthered understanding of the lung cancer immunotherapy treatment journey and identified key design requirements of a rehabilitation programme. Patient or Public Contribution: Two patient advocates contributed to this study as members of the project steering committee. Their contributions for this study included reviewing and providing feedback on the proposed study design and the interview and workshop topic and question guides. Patient, carer and healthcare professionals co‐designed the rehabilitation programme through individual interviews and a series of small‐group workshops.
      pubtype: Academic Journal
      doctype:
        pictorial
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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