Chronic Pain Lived Experience of Pediatric Sickle Cell Disease: A Qualitative Study.

Objective: This study aimed to describe the child- and parent-centered lived experience of chronic sickle cell pain and its management among children and adolescents living with sickle cell disease (SCD). A secondary aim was to examine culturally relevant treatment preferences to inform clinically m...

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Bibliographic Details
Published in:	Health Psychology Vol. 45; no. 1; pp. 5 - 14
Main Authors:	Sil, Soumitri, Mooney, Jan T., Shih, Sharon, Dampier, Carlton, Cohen, Lindsey L.
Format:	Article
Published:	American Psychological Association Jan2026
Subjects:	Health services accessibility Sickle cell anemia Qualitative research Job absenteeism Autonomy (Psychology) Interviewing Schools Hospital care Family relations Parenting Experience Sound recordings Pain management Psychological stress Guilt (Psychology) Psychology of parents Social support Behavior therapy Socialization Adolescence Children Chronic pain & psychology Thematic analysis Research methodology Medical coding Grounded theory Data analysis software
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