Model of interprofessional care for the newborn and family during neonatal death and dying: a multistage evaluation mixed methods study.

An interprofessional care model is crucial to advancing the quality of integrated, patient-centered care, particularly in critical situations. The purpose of this study was to develop an interprofessional care model for newborns and their families experiencing neonatal death and dying. This is an ex...

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Publicado en:Journal of Interprofessional Care Vol. 40; no. 3; pp. 518 - 527
Autores principales: da Rosa, Rosiane, dos Santos, José Luís Guedes, Ross, Ratchneewan, de Lima, Margarete Maria, Antunes Wilhelm, Laís, Costa, Roberta
Formato: research tables/charts Journal Article
Publicado: Taylor & Francis Ltd May/Jun2026
Acceso en línea:Ver este registro en EBSCOhost
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      dt: May/Jun2026
      vid: 40
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      pub: Taylor & Francis Ltd
      place: Philadelphia, Pennsylvania
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        10.1080/13561820.2026.2634234
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        atl: Model of interprofessional care for the newborn and family during neonatal death and dying: a multistage evaluation mixed methods study.
      aug:
        au:
          da Rosa, Rosiane
          dos Santos, José Luís Guedes
          Ross, Ratchneewan
          de Lima, Margarete Maria
          Antunes Wilhelm, Laís
          Costa, Roberta
        affil: Nursing Department, Neonatal Unit at Carmela Dutra Maternity, Florianopolis, Brazil
      sug:
        subj:
          Perinatal Death
          Patient Care Evaluation
          Multidisciplinary Care Team Education
          Health Care Delivery Evaluation
          Family Centered Care Evaluation
          Models, Theoretical Evaluation
          Program Development
          Human
          Multimethod Studies
          Exploratory Research
          Intensive Care Units, Neonatal
          Hospitals, Public
          Brazil
          Attitude of Health Personnel
          Attitude to Death
          Questionnaires
          Grounded Theory
          Holistic Care
          Teamwork Education
          Support, Psychosocial
          Interprofessional Relations
          Professional-Family Relations
          Communication
          Palliative Care
          Funding Source
          Data Analysis Software
          Kruskal-Wallis Test
          Post Hoc Analysis
          Spearman's Rank Correlation Coefficient
          Interviews
          Descriptive Statistics
          Infant, Newborn
          Infant, Newborn: birth-1 month
      ab: An interprofessional care model is crucial to advancing the quality of integrated, patient-centered care, particularly in critical situations. The purpose of this study was to develop an interprofessional care model for newborns and their families experiencing neonatal death and dying. This is an explanatory sequential mixed-methods design with three phases. Data were collected in two public neonatal units in Brazil. In Phase I, quantitative data were collected from 66 healthcare professionals using two instruments: demographic characterization and the Profile of Attitudes Toward Death – Brazilian version. In Phase II, qualitative data were collected and analyzed using Grounded Theory with 13 professionals. Phase III evaluated the proposed model. The model emphasizes sensitive and holistic care, tailored to the needs of newborns and families experiencing neonatal death and dying. It emphasizes adequate training for the healthcare team, along with a strong support network, solid teamwork, a supportive environment, clear and positive interprofessional and professional-family communication, time reserved for parents with the newborn, and a time to say goodbye. The model was evaluated as suitable for guiding interprofessional teams in the context of neonatal death and dying, with a Content Validity Index (CCI) above 80% in all categories. Although communication and family support are pillars of palliative care, the model proposed in this study stands out for its systematic approach to integrating team support, recognizing that the attitude and well-being of professionals are crucial to the provision of sensitive and holistic interprofessional care. Future research should apply, test, and adjust the model in real neonatal settings.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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