Overcoming Patient-Centered Outcomes Research Barriers During and After Critical Illness Hospitalization.
Background: Recruiting patients/family for research related to intensive care unit (ICU) care can be challenging. Objectives: To engage diverse stakeholders (patients with recent ICU discharge, their families/caregivers, ICU clinicians, and health services researchers) to identify barriers to resear...
| Publicado en: | American Journal of Critical Care Vol. 35; no. 3; pp. 199 - 205 |
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| Autores principales: | , , , , , , |
| Formato: | CEU research tables/charts Journal Article |
| Publicado: |
American Association of Critical-Care Nurses
May2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=193458782&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 193458782 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10623264 44L jtl: American Journal of Critical Care issn: 10623264 maglogo: N pubinfo: dt: May2026 vid: 35 iid: 3 pid: 2559 pub: American Association of Critical-Care Nurses place: Alisa Veijo, California artinfo: ui: 193458782 193458782 193458782 10.4037/ajcc2026665 193458782 ppf: 199 ppct: 6 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Overcoming Patient-Centered Outcomes Research Barriers During and After Critical Illness Hospitalization. aug: au: Kleinpell, Ruth LaNoue, Marianna Lacey, Susan Hwang, David Y. Sevin, Carla M. Boehm, Leanne M. Andrews, Adair affil: professor and vice-dean, Vanderbilt University School of Nursing, Nashville, Tennessee sug: subj: Critical Illness Therapy Hospitalization Patient Centered Care Outcome Assessment Research Subjects Psychosocial Factors Family Psychosocial Factors Stakeholder Participation Psychosocial Factors Caregivers Psychosocial Factors Intensive Care Units Patient Discharge Education, Continuing (Credit) Human United States Comparative Studies Descriptive Statistics Concept Mapping Videoconferencing Patient Selection Patient Participation Length of Stay Fear Health Personnel Research Personnel Misinformation Research, Medical ab: Background: Recruiting patients/family for research related to intensive care unit (ICU) care can be challenging. Objectives: To engage diverse stakeholders (patients with recent ICU discharge, their families/caregivers, ICU clinicians, and health services researchers) to identify barriers to research engagement among recently discharged patients and their family members/caregivers and to highlight strategies to address the barriers. Methods: Four sessions of group concept mapping, a participatory research and engagement approach, were used with 16 former patients and their family members/caregivers and 23 professionals (clinicians and researchers) to elicit barriers to ICU research participation. Strategies to address the barriers were outlined and categorized according to themes identified in the literature, with input from a patient and family advisory board. Results: Ninety-eight unique barriers were identified and organized into 7 clusters: negative experiences surrounding ICU stay, difficult research logistics, patient and family characteristics, ICU setting limitations, post–critical illness issues, research fears, and (mis)perceptions about research. Strategies to overcome those barriers were identified and outlined in an open access, web-based toolkit to help ICU clinicians and researchers engage people in research. Conclusions: Ensuring that patients and families have sufficient information about research participation, promoting a research-supportive culture, addressing uncertainty about research participation, and providing clinical staff with access to research training can help engage ICU patients and family members in critical care research. pubtype: Academic Journal doctype: CEU research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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