Lived experience-informed eating disorders research: an illustrative example.

The mental health field, and more recently, the eating disorders field specifically, has witnessed a paradigm shift towards collaborative research which is conducted in partnership with individuals possessing lived and living experiences of mental health conditions (i.e. those with personal lived or...

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Publicado en:Eating Disorders Vol. 34; no. 3; pp. 281 - 293
Autores principales: Phillipou, Andrea, Calvert, Shannon, de Boer, Kathleen, Dwyer, Dominic, Eddy, Kamryn T., Gao, Caroline, Pepin, Genevieve, Miles, Stephanie, Neill, Erica
Formato: Journal Article
Publicado: Taylor & Francis Ltd May/Jun2026
Acceso en línea:Ver este registro en EBSCOhost
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        atl: Lived experience-informed eating disorders research: an illustrative example.
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          Phillipou, Andrea
          Calvert, Shannon
          de Boer, Kathleen
          Dwyer, Dominic
          Eddy, Kamryn T.
          Gao, Caroline
          Pepin, Genevieve
          Miles, Stephanie
          Neill, Erica
        affil: Orygen, Melbourne, VIC, Australia
      sug:
        subj:
          Eating Disorders
          Life Experiences
          Research, Mental Health Australia
          Collaboration
          Australia
          Patient Participation
          Mental Disorders
          Psychoeducation
          Study Design
      ab: The mental health field, and more recently, the eating disorders field specifically, has witnessed a paradigm shift towards collaborative research which is conducted in partnership with individuals possessing lived and living experiences of mental health conditions (i.e. those with personal lived or living experience and those who are family, carers, or other supports). However, despite this shift, the challenge of engaging individuals with lived experiences in a manner that avoids tokenism, manages power imbalances, and ensures meaningful involvement persists. This paper aims to encourage those working in the eating disorders field to establish authentic, equitable partnerships with lived experience contributors. To provide clarity and to encourage researchers to engage in effective and authentic lived experience collaborations, this paper describes different types of lived experience involvement in research, using real-life examples from a study that is currently being established.
      pubtype: Academic Journal
      doctype: Journal Article
      ougenre: Article
    language: English
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