Planned time burden for patients participating in phase 2 cancer trials.

Background Participation in cancer trials requires a commitment of time and research burden from patients. Prior work has highlighted the time burden of clinic visits during phase 1 trial participation. We extended these findings to phase 2 cancer trials. Materials and methods We reviewed a random s...

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Publicado en:Oncologist Vol. 31; no. 5; pp. 1 - 9
Autores principales: Ouimet, Charlotte, Iskander, Renata, Nipp, Ryan, Kimmelman, Jonathan
Formato: research tables/charts Journal Article
Publicado: Oxford University Press / USA May2026
Acceso en línea:Ver este registro en EBSCOhost
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      dt: May2026
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      pub: Oxford University Press / USA
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        atl: Planned time burden for patients participating in phase 2 cancer trials.
      aug:
        au:
          Ouimet, Charlotte
          Iskander, Renata
          Nipp, Ryan
          Kimmelman, Jonathan
        affil: Department of Equity, Ethics and Policy, McGill University School of Population and Global Health, Montreal, QC H3A 1G1, Canada
      sug:
        subj:
          Time Evaluation
          Commitment Evaluation
          Consumer Participation
          Cancer Patients
          Research Subjects
          Clinical Trials
          Human
          United States
          Funding Source
          Power Analysis
          Random Sample
          Progression-Free Survival
          Overall Survival
          Biopsy
          Office Visits
      ab: Background Participation in cancer trials requires a commitment of time and research burden from patients. Prior work has highlighted the time burden of clinic visits during phase 1 trial participation. We extended these findings to phase 2 cancer trials. Materials and methods We reviewed a random sample of 73 phase 2 cancer trial arms with results posted on ClinicalTrials.gov 2023-2024. We extracted scheduled visit frequency and procedures from each protocol. Primary outcomes included the absolute number of planned research days (PRDs) in the first 30 days and subsequent months of participation. Secondary outcomes included procedure volume throughout the trial. We also estimated the proportion of progression-free survival (PFS) and overall survival (OS) spent in clinic. Results The median number of PRDs in the first 30 days of participating in a phase 2 trial was 5 (IQR 4-7) and 2 (IQR 1-3) per month thereafter. Across the course of a trial, patients had a median of 13 PRDs and underwent a median of 13 (IQR 10-22) blood draws, 6 (IQR 2-26) infusions, and 1 (IQR 0-2) mandatory biopsy. PRDs accounted for 10.5% of median PFS and 4.0% of median OS. The average phase 2 trial involved a cumulative 11 patient-months of planned visits. Conclusion Patients in phase 2 cancer trials commit a substantial amount of time to research participation. Further work is needed to compare these estimates to time spent in standard of care and to find ways to reduce the time toxicity of trial participation.
      pubtype: Academic Journal
      doctype:
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      ougenre: Article
    language: English
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