Electronic Patient-Reported Outcome Measure and Decision Support Tool Option for Early Intervention Service Quality: A Pilot Cluster-Randomized Pragmatic Trial.
Introduction: The Young Children's Participation in Environment Measure (YC-PEM) is an evidence-based and promising electronic patient-reported outcome (e-PRO) option to improve early intervention (EI) service quality, such as when designing the EI service plan. Aim: Establish the preliminary effect...
| Publicado en: | Advances in Rehabilitation Science & Practice Vol. 15; pp. 1 - 15 |
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| Autores principales: | , , , , , , , , , , , , , , , , , , , |
| Formato: | pictorial research tables/charts randomized controlled trial Journal Article |
| Publicado: |
Sage Publications Inc.
5/7/2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=193622947&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 193622947 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 27536351 N7A5 jtl: Advances in Rehabilitation Science & Practice issn: 27536351 maglogo: Y pubinfo: dt: 5/7/2026 vid: 15 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 193622947 193622947 193622947 10.1177/27536351261445239 193622947 ppf: 1 ppct: 14 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Electronic Patient-Reported Outcome Measure and Decision Support Tool Option for Early Intervention Service Quality: A Pilot Cluster-Randomized Pragmatic Trial. aug: au: Kaelin, Vera C. Rizk, Sabrin Chen, Yi-Fan Dooling-Litfin, Jodi Lerner Papautsky, Elizabeth Leland, Natalie E. Murphy, Natalie J. McManus, Beth M. Lage, Carla R. Villegas, Vivian Kuznicki, Lindsay Pedrow, Amanda Khetani, Mary A. Bane, Jamie Banks, Shannon Derryberry-Lesher, Amber Drummond, Kelsy Granzen, Kelsey Gray, Willow Howell, Ann affil: Children's Participation in Environment Research Lab, University of Illinois Chicago, IL, USA sug: subj: Children with Disabilities Psychosocial Factors Patient-Reported Outcomes Social Participation Evaluation Decision Support Systems, Clinical Early Intervention Quality of Health Care Program Implementation Evaluation Outcomes (Health Care) Human Male Female Child, Preschool Child Randomized Controlled Trials Pilot Studies Random Assignment Control Group Funding Source Child, Preschool: 2-5 years Child: 6-12 years Male Female ab: Introduction: The Young Children's Participation in Environment Measure (YC-PEM) is an evidence-based and promising electronic patient-reported outcome (e-PRO) option to improve early intervention (EI) service quality, such as when designing the EI service plan. Aim: Establish the preliminary effectiveness of implementing the YC-PEM e-PRO and program-specific shared decision support tool option for EI service quality when designing a service plan. Methods: For this 2-arm pilot pragmatic trial with cluster randomization at the provider level, 76 caregivers enrolled and 57 caregivers (n = 29 intervention group; n = 28 control group) completed pre- and post-intervention measures. Intervention group caregivers completed the YC-PEM e-PRO and program-specific shared decision support tool and were compared to usual care on EI service quality indicators: (1) caregiver perceptions of family-centeredness, (2) caregiver activation for shared decision-making, (3) caregiver engagement in service design and implementation; and (4) service plan quality. Results: No significant group differences at baseline were noted. Pre-post EI service quality revealed no significant differences in the adjusted model (P >.05). However, intervention group families had higher rates participation-focused service plans (69.2%) versus controls (51.4%), most of which met state-level criteria for quality (84%). Conclusion: For EI service quality indicators, this intervention option demonstrated comparable performance to usual care. This finding suggests the intervention promoted high quality, participation-focused service planning despite no overall differences in EI service quality, warranting further testing of implementation factors and effectiveness in various service contexts. Trial Registration Number: NCT04562038 pubtype: Academic Journal doctype: pictorial research tables/charts randomized controlled trial Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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