Global Insights on the Involvement of Ethnic Minority Populations in Health and Social Care Research Priority Setting: A Systematic Scoping Review.

Background: Representing all population groups in health and social care research is essential for generating research relevant to decision making in everyday clinical and social healthcare policy and practice. Conducting research that is relevant to all, starts with ensuring equitable representatio...

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Publicado en:Journal of Racial & Ethnic Health Disparities Vol. 13; no. 3; pp. 1818 - 1830
Autores principales: Ekezie, Winifred, Cassambai, Shabana, Curtis, Ffion, Czyznikowska, Barbara, O'Mahoney, Lauren L., Willis, Andrew, Jeffers, Shavez, Abdala, Ruksar, Butt, Ayesha, Chudasama, Yogini, Khunti, Kamlesh, Farooqi, Azhar
Formato: research systematic review tables/charts Journal Article
Publicado: Springer Nature Jun2026
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jun2026
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      pub: Springer Nature
      place: New York, New York
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        10.1007/s40615-025-02377-x
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        atl: Global Insights on the Involvement of Ethnic Minority Populations in Health and Social Care Research Priority Setting: A Systematic Scoping Review.
      aug:
        au:
          Ekezie, Winifred
          Cassambai, Shabana
          Curtis, Ffion
          Czyznikowska, Barbara
          O'Mahoney, Lauren L.
          Willis, Andrew
          Jeffers, Shavez
          Abdala, Ruksar
          Butt, Ayesha
          Chudasama, Yogini
          Khunti, Kamlesh
          Farooqi, Azhar
        affil: National Institute for Health and Social Care Research (NIHR), Applied Research Collaboration East Midlands (ARC EM), Leicester, UK
      sug:
        subj:
          Minority Groups
          Communities
          Research Subjects
          Research, Medical
          Research, Social Work
          Research Priorities
          Human
          Funding Source
          Scoping Review
          Medline
          CINAHL Database
          Cochrane Library
          Psycinfo
          Medical Practice
          Social Work
          Descriptive Statistics
          Geographic Locations
          Storytelling
          Conceptual Framework
          Data Analysis Software
      ab: Background: Representing all population groups in health and social care research is essential for generating research relevant to decision making in everyday clinical and social healthcare policy and practice. Conducting research that is relevant to all, starts with ensuring equitable representation in research priority selection. This scoping review aimed to identify evidence of published and good practices in health and social care research priority-setting activities, which included people from ethnic minority backgrounds. Methods: The search was conducted using MEDLINE, CINAHL, Cochrane Library, PsycINFO, and Scopus databases, following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) guideline. Studies that reported including ethnic minority community members in health and social care research priority setting from 2010 were considered. The research priority processes were evaluated using a checklist of good practices in research priority settings. Findings: Forty-seven articles representing 12 countries and various health topics were included. Group discussion was the most common approach for conducting the research priority setting activities. No study addressed all 20 recommended research priority–setting good practice principles. Most studies provided sufficient information about the context of the priority-setting exercise. Examples of good practices included community advisory boards, local approaches to health research, and multi-disciplinary steering groups. Conclusion: Representation of ethnic minority populations' involvement in research across different countries and broader health and social care areas is limited. Recommendations to address these challenges are presented and could help inform researchers, funders, and policymakers to understand what health and social care research topics are prioritised by ethnic minority communities.
      pubtype: Academic Journal
      doctype:
        research
        systematic review
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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