Prontuário Compassivo : Development and initial assessment of a palliative care digital platform in socially vulnerable contexts.
Introduction: Structured clinical records are essential for ensuring the quality and continuity of palliative care, particularly in socially vulnerable contexts. Existing digital systems rarely capture psychosocial or subjective data, limiting interdisciplinary collaboration and person-centered care...
| Published in: | Palliative Care & Social Practice Vol. 20; pp. 1 - 17 |
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| Main Authors: | , , , , , , , , , , , |
| Format: | research tables/charts Journal Article |
| Published: |
Sage Publications Inc.
5/15/2026
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=193813679&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 193813679 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 26323524 M8AB jtl: Palliative Care & Social Practice issn: 26323524 maglogo: Y pubinfo: dt: 5/15/2026 vid: 20 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 193813679 193813679 193813679 10.1177/26323524261445577 193813679 ppf: 1 ppct: 16 formats: tig: atl: Prontuário Compassivo : Development and initial assessment of a palliative care digital platform in socially vulnerable contexts. aug: au: Nascimento, Janaína Santos Trotte, Liana Amorim Corrêa Oliveira, Livia Costa de da Rosa Mesquita, Maria Gefé Garcia Moreira, Virgílio Silva, Alexandre Ernesto Cezar Diniz, Bruna Arruda Coelho, Glaziela Correa Ferreira, Ana Paula Crispino, Thiago de Sousa Murta, Márcia Carvalho de Queiroz Mello, Fernanda affil: Department of Occupational Therapy, Federal University of Rio de Janeiro, Brazil sug: subj: Palliative Care Brazil Digital Technology World Wide Web Program Development Program Evaluation Documentation Community Health Services Special Populations Human Brazil Methodological Research Workflow Multidisciplinary Care Team Meetings Home Health Care Program Implementation Access to Information Thematic Analysis Multimethod Studies Continuity of Patient Care Funding Source Karnofsky Performance Status Scales ab: Introduction: Structured clinical records are essential for ensuring the quality and continuity of palliative care, particularly in socially vulnerable contexts. Existing digital systems rarely capture psychosocial or subjective data, limiting interdisciplinary collaboration and person-centered care planning. Objective: To describe the development and preliminary usability assessment of Prontuário Compassivo, a Brazilian digital platform designed to support clinical documentation and coordination of community-based palliative care. Method: This methodological study was conducted between 2022 and 2025, adopting an agile development approach grounded in the Scrum framework and guided by user-centered design principles. The platform was implemented as a responsive web system with secure authentication mechanisms, interoperability through REST (Representational State Transfer) application programming interfaces, and modules integrating standardized palliative care assessment tools. Usability assessment was conducted prospectively between February 2024 and January 2025 within the Favela Compassiva project in Rio de Janeiro. Data collection included direct observation of home visits, field diaries, and interdisciplinary meetings documenting professionals' interactions with the platform. Usability aspects explored included learnability, ease of use, navigation clarity, and integration into routine clinical workflows. Results: By January 2025, the system had generated 520 clinical records used by 71 interdisciplinary health professionals involved in community-based palliative care. Three analytical categories emerged: (1) routine use, (2) challenges related to features and user diversity, and (3) contextual adjustments. These findings indicate that the platform became embedded in routine home-based care activities, although its use varied depending on users' familiarity with digital tools. Iterative refinements included simplified and extended versions, reorganized navigation flows, and automated referral features. Conclusion: Prontuário Compassivo demonstrated technical feasibility, contextual usability, and adaptability in resource-limited environments. Its integration of interprofessional documentation, artificial intelligence resources, and interoperability positions it as a promising digital health solution for improving documentation, communication, and continuity of palliative care in socially vulnerable settings. Future studies should conduct standardized usability testing and evaluate the platform's impact on clinical outcomes. Plain language summary: Prontuário Compassivo : a digital platform for socially vulnerable contexts Clinical records that follow a clear structure are important to ensure quality and continuity of palliative care, especially in socially vulnerable communities. However, most digital systems do not include psychosocial or subjective information, which makes teamwork and person-centered care planning more difficult. Objective: To describe the development and initial usability testing of Prontuário Compassivo, a Brazilian digital platform created to document community-based palliative care. Method: This methodological study was conducted between 2022 and 2025, adopting an agile development approach grounded in the Scrum framework and guided by user-centered design principles. The platform includes responsive design, secure authentication, REST API integration, and validated clinical scales. Usability was tested between February 2024 and January 2025 within the Favela Compassiva project in Rio de Janeiro. Data were collected through observation of home visits, field notes, and team meetings. Thematic analysis followed Braun and Clarke's framework. Results: By January 2025, 520 clinical records had been created. Three main themes emerged: (1) routine use, (2) challenges related to system features and user diversity, and (3) the need for contextual adjustments. Improvements were made through several updates, such as simplified and extended versions, clearer navigation, and automatic referral tools. Conclusion: Prontuário Compassivo proved to be technically feasible, easy to use, and adaptable to low-resource settings. By combining interdisciplinary documentation, artificial intelligence tools, and interoperability, it shows strong potential to enhance record keeping, communication, and continuity of palliative care in socially vulnerable contexts. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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