Research Letter: Using participatory approach to facilitate engagement of people with lived experience of schizophrenia in research: A co-designed Participant Information and Consent Form.

This article focuses on the co-design of Participant Information and Consent Forms (PICFs) tailored for people living with schizophrenia to improve comprehension and engagement in clinical trials. Through participatory sessions with individuals experiencing schizophrenia, researchers developed a sho...

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Publicado en:Australian & New Zealand Journal of Psychiatry Vol. 60; no. 6; pp. 599 - 602
Autores principales: Arnautovska, Urska, Soole, Rebecca, Korman, Nicole, Baker, Andrea, Siskind, Dan
Formato: forms letter research Journal Article
Publicado: Sage Publications Inc. Jun2026
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jun2026
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      pub: Sage Publications Inc.
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        atl: Research Letter: Using participatory approach to facilitate engagement of people with lived experience of schizophrenia in research: A co-designed Participant Information and Consent Form.
      aug:
        au:
          Arnautovska, Urska
          Soole, Rebecca
          Korman, Nicole
          Baker, Andrea
          Siskind, Dan
        affil: Faculty of Medicine, University of Queensland, Brisbane, QLD, Australia
      sug:
        subj:
          Patient Participation
          Schizophrenia
          Research, Medical
          Research Subject Recruitment
          Consent (Research)
          Psychiatric Patients
          Collaboration
          Residential Facilities
          Human
          Needs Assessment
          Patient Preference
          Reading
          Feedback
          Conversation
          Motivation
          Graphics
          Language
          Nursing Home Residents
      ab: This article focuses on the co-design of Participant Information and Consent Forms (PICFs) tailored for people living with schizophrenia to improve comprehension and engagement in clinical trials. Through participatory sessions with individuals experiencing schizophrenia, researchers developed a shorter, visually engaging PICF alongside a detailed text-based version, incorporating user feedback to enhance accessibility and support informed consent. The co-designed PICFs aim to address cognitive and motivational challenges common in this population, promote autonomy, and reduce barriers to ethical research participation. This approach exemplifies best practices in involving people with lived experience in mental health research and highlights the potential for such materials to improve consent processes and reduce stigma.
      pubtype: Academic Journal
      doctype:
        forms
        letter
        research
        Journal Article
      ougenre: Unknown
    language: English
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