Experiences and needs of mothers concerning their involvement in the life and care of their adult sons with mild intellectual disabilities and autism spectrum disorders who display challenging behaviour and live in residential facilities.
Objectives: Parental involvement is crucial for individuals with comorbid mild intellectual disabilities (MID) and autism spectrum disorders (ASD) who display challenging behaviour and reside in residential facilities. However, extant literature predominantly concentrates on the perspectives of pare...
| Publicado en: | International Journal of Developmental Disabilities Vol. 72; no. 4; pp. 729 - 743 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Jun2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=193980451&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 193980451 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 20473869 F2SP jtl: International Journal of Developmental Disabilities issn: 20473869 maglogo: N pubinfo: dt: Jun2026 vid: 72 iid: 4 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 193980451 177621135 193980451 193980451 10.1080/20473869.2024.2359130 193980451 ppf: 729 ppct: 14 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Experiences and needs of mothers concerning their involvement in the life and care of their adult sons with mild intellectual disabilities and autism spectrum disorders who display challenging behaviour and live in residential facilities. aug: au: Boer, Maria den Giesbers, Sanne A. H. Frielink, Noud Roelofsen, Eline Vromans, Laura Embregts, Petri affil: Tranzo, Tilburg School of Social and Behavioural Sciences, Tilburg University, Tilburg, The Netherlands sug: subj: Maternal Attitudes Human Needs (Psychology) Maternal Role Intellectual Disability Psychosocial Factors Autism Spectrum Disorder Psychosocial Factors Disruptive Behavior Adult Children Psychosocial Factors Residential Facilities Mother-Child Relations Mothers Psychosocial Factors Human Funding Source Qualitative Studies Semi-Structured Interview Purposive Sample Thematic Analysis Interview Guides Videoconferencing Adult Middle Age Aged Aged, 80 and Over Descriptive Statistics Professional-Family Relations Collaboration Sons Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Aged, 80 & over ab: Objectives: Parental involvement is crucial for individuals with comorbid mild intellectual disabilities (MID) and autism spectrum disorders (ASD) who display challenging behaviour and reside in residential facilities. However, extant literature predominantly concentrates on the perspectives of parents of individuals with MID and ASD who display challenging behaviour and reside in their family home. In the current study, we aimed to understand the experiences and needs of mothers of residential living sons concerning their involvement. Methods: Five mothers of adult sons with MID and ASD who display challenging behaviour and live in a residential facility were interviewed. Data were analysed using thematic analysis. Results: Three overarching themes were identified in the data: Fighting for appropriate care and support; Searching for a level of involvement that suits me; What is important to me in terms of support for my son and myself. Conclusions: Although mothers reported that they wanted to be less involved in caring for their sons, they struggled to scale back their involvement. Efforts should be made to reach both a suitable and sustainable level of involvement for individual mothers. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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