Care Deliberations of Family Carers of People Living With Dementia—Applying an Affective‐Discursive Practices Approach.
Dementia is the leading cause of care needs for older adults in Finland, with significant care contributions from families. Although not legally obliged, families often provide care driven by emotional bonds, moral obligations and practical considerations. Even though previous research has extensive...
| Publicado en: | Sociology of Health & Illness Vol. 48; no. 4; pp. 1 - 13 |
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| Autores principales: | , , , |
| Formato: | Artículo |
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Wiley-Blackwell
May2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=194009328&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 194009328 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 01419889 7RA jtl: Sociology of Health & Illness issn: 01419889 maglogo: Y pubinfo: dt: May2026 vid: 48 iid: 4 pid: 480 pub: Wiley-Blackwell artinfo: ui: 194009328 10.1111/1467-9566.70194 ppf: 1 ppct: 12 formats: tig: atl: Care Deliberations of Family Carers of People Living With Dementia—Applying an Affective‐Discursive Practices Approach. aug: au: Lönnroth, Marja Halonen, Ulla Leinonen, Emilia Aerschot, Lina Van affil: Faculty of Social Sciences, University of Helsinki, Helsinki, Finland Department of Social Sciences and Philosophy, University of Jyväskylä, Jyväskylä, Finland Faculty of Social Sciences, Tampere University, Tampere, Finland su: Finland Qualitative research Psychological distress Culture Decision making Emotions Family relations Social norms Family roles Caregivers Ethics Motivation (Psychology) Communication Quality of life Affect (Psychology) Family support Social support Research funding Ethical problems Descriptive statistics Burden of care Diary (Literary form) Dementia Dementia patients sug: subj: Qualitative research Psychological distress Culture Decision making Emotions Family relations Social norms Family roles Caregivers Ethics Motivation (Psychology) Communication Quality of life Affect (Psychology) Family support Social support Finland Other Individual and Family Services Research funding Ethical problems Descriptive statistics Burden of care Diary (Literary form) Dementia Dementia patients ab: Dementia is the leading cause of care needs for older adults in Finland, with significant care contributions from families. Although not legally obliged, families often provide care driven by emotional bonds, moral obligations and practical considerations. Even though previous research has extensively explored the reasons why families provide care, analyses of their affective dimensions remain scarce. This study aims to explore these by examining the care deliberations of family carers of people living with dementia, using an affective–discursive practices approach. It focuses on how the entangled dimensions of affect, embodied experience and discourse shape their care choices, applying the approach to the written diaries of 15 Finnish adult children of people living with dementia. The approach embeds personal experiences and interactions within broader sociocultural structures. The results show how carers draw from societal norms and expectations linked to family care (e.g., devotion, duty and reciprocity) but also how they might renegotiate them to justify withdrawing from care. The analysis highlights how affective dilemmas can be approached by linking affect to discourse on a macro level, looking at societal discourses and the affective climates of care and examining how affect is mobilised in everyday interactions to make sense of care choices. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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