A Regional Data Space for Urgent and Emergency Care in Germany...36th Medical Informatics Europe (MIE) Conference, May 25-28, 2026, Genoa, Italy

Fragmented documentation across emergency medical services, emergency departments, and outpatient care hinders the analysis of patient pathways. This work presents a data space that enables the creation of process-mining-ready event logs from heterogeneous routine data used within the TRANSPARENT st...

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Detalles Bibliográficos
Publicado en:Studies in Health Technology & Informatics Vol. 336; pp. 1167 - 1172
Autores principales: BIENZEISLER, Jonas, HEIDEMEYER, Hauke, ROEHRIG, Rainer, KOMBEIZ, Alexander, ALHASKIR, Mohamed, HERTWIG, Miriam, UNTERKOFLER, Jenny, BROKMANN, Jörg, OTTO, Ronny, PANAGIOTIDIS, Despina, BEYEL, Harry H., PEGORARO, Marco, PEEVA, Viki, SCHWANEN, Christopher T., VAN DER AALST, Wil M. P., ZOCH-LESNIAK, Beate, WITTMAR, Ralf, MAJEED, Raphael W.
Formato: pictorial proceedings research tables/charts Journal Article
Publicado: Sage Publications Inc. 2026
Acceso en línea:Ver este registro en EBSCOhost
Descripción
Sumario:Fragmented documentation across emergency medical services, emergency departments, and outpatient care hinders the analysis of patient pathways. This work presents a data space that enables the creation of process-mining-ready event logs from heterogeneous routine data used within the TRANSPARENT study to analyze patient pathways in Germany. Using a Design Science Research approach, the data space was developed to link primary care, prehospital, and emergency department data from the national AKTIN infrastructure through local pseudonymization, a trusted third party for record linkage, and a trusted research environment. Governance follows national and European privacy regulations. The infrastructure represents the first framework of its kind in Germany for accessing comprehensive, cross-sectoral data from urgent and emergency care.