The Value of Non-Domination in Supported Decision-Making for Research Participation for Individuals with Intellectual and Developmental Disabilities.
This paper argues that research ethics for individuals with intellectual and developmental disabilities must attend to the value of non-domination. First, we highlight the role of domination in the history of abusive research practices against individuals with intellectual and developmental disabili...
| Publicado en: | Journal of Law, Medicine & Ethics Vol. 54; no. 2; pp. 56 - 67 |
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| Autores principales: | , |
| Formato: | tables/charts Journal Article |
| Publicado: |
Cambridge University Press
Summer2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=194133291&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 194133291 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10731105 JME jtl: Journal of Law, Medicine & Ethics issn: 10731105 maglogo: N pubinfo: dt: Summer2026 vid: 54 iid: 2 pid: 15979 pub: Cambridge University Press artinfo: ui: 194133291 194133291 194133291 10.1017/jme.2025.10193 194133291 ppf: 56 ppct: 11 formats: tig: atl: The Value of Non-Domination in Supported Decision-Making for Research Participation for Individuals with Intellectual and Developmental Disabilities. aug: au: Howard, Dana McCarthy, Allison M. affil: Department of Biomedical Education and Anatomy, Center for Bioethics, The Ohio State University Wexner Medical Center, Columbus, United States sug: subj: Decision Making Developmental Disabilities Psychosocial Factors Persons with Intellectual Disabilities Psychosocial Factors Research Ethics Research Subjects Psychosocial Factors Consent Psychosocial Factors Special Populations Civil Rights Bioethics Social Justice Autism Spectrum Disorder Support, Psychosocial Human Rights Collaboration Interpersonal Relations Autonomy Health Policy ab: This paper argues that research ethics for individuals with intellectual and developmental disabilities must attend to the value of non-domination. First, we highlight the role of domination in the history of abusive research practices against individuals with intellectual and developmental disabilities, practices which directly led to existing protections for this vulnerable population. Second, we argue that existing protections do not adequately safeguard potential participants from domination in decision-making about whether to participate. This is a distinct concern from the well-established criticisms that existing protections may wrongfully exclude potential participants. Finally, we outline and defend an account of supported decision-making grounded in the value of non-domination in order to safeguard potential participants from domination. Our account nonetheless preserves supported decision-making's possibilities for greater inclusion of individuals with intellectual and developmental disabilities in research participation. pubtype: Academic Journal doctype: tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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