CAREGIVER SKILLS TRAINING NEEDS AMONG FAMILY MEMBERS CARING FOR PATIENTS WITH HIGH-GRADE GLIOMA.

Background & Significance: Patients with high-grade glioma face rapid disease progression, resulting in growing reliance on family caregivers for support with activities of daily living, instrumental activities of daily living, and symptom management. Purpose: Our goal was to uncover where caregiver...

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Publicado en:Oncology Nursing Forum Vol. 53; no. 2; p. 34
Autores principales: Whisenant, Meagan, Bedse, Sanika, Weathers, Shiao-Pei, Ngo-Huang, An
Formato: Journal Article
Publicado: Oncology Nursing Society Mar2026
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Mar2026
      vid: 53
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      pub: Oncology Nursing Society
      place: Pittsburgh, Pennsylvania
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        atl: CAREGIVER SKILLS TRAINING NEEDS AMONG FAMILY MEMBERS CARING FOR PATIENTS WITH HIGH-GRADE GLIOMA.
      aug:
        au:
          Whisenant, Meagan
          Bedse, Sanika
          Weathers, Shiao-Pei
          Ngo-Huang, An
        affil: PhD, APRN, FAAN, The University of Texas Health Science Center at Houston Cizik School of Nursing, Houston, TX
      sug:
      ab: Background & Significance: Patients with high-grade glioma face rapid disease progression, resulting in growing reliance on family caregivers for support with activities of daily living, instrumental activities of daily living, and symptom management. Purpose: Our goal was to uncover where caregivers feel most unsupported, to inform development of interventions that improve both caregiver and patient outcomes. Methods: Baseline questionnaires were administered to 50 caregivers of patients with high-grade glioma participating in a randomized controlled pilot trial of a caregiver training intervention. Caregiver psychological psychological symptoms (HADS), caregiving self-efficacy (CSE), role adjustment (CRA), and caregiver skills use and training needs were measured. Descriptive statistics, correlations, and paired samples t-tests were used. Findings and Interpretations: Caregivers (mean age = 50 years) were female (n=37, 74%), White (n=41, 82%), and non-Hispanic (n=43, 86%). Caregivers reported minimal additional assistance in caring for patients (n=18, 36%). Most caregivers reported no prior instruction in feeding (94%), bathing (86%), grooming (90%), dressing (86%), toileting (90%), mobility (78%), and navigating stairs (80%). Similarly, most caregivers reported no prior training in managing finances (50%), managing medications (64%), managing appointment scheduling (50%), attending healthcare appointments (56%), and managing health insurance (64%). Caregiver depression was statistically significantly associated with caregiver anxiety, self-efficacy, and role adjustment with impact on finance, schedule, and health (r = 0.50, r = -0.59, r = 0.46, r = 0.29, r = 0.42 respectively). Discussion: These findings reveal a gap in practical support for caregivers of patients with high-grade glioma, highlighting the urgent need for caregiver interventions that address skills training needs.
      pubtype: Academic Journal
      doctype: Journal Article
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    language: English
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