Futile or Fruitful? Institutional Conscience and Values Pluralism in Pediatric Care.

The article focuses on the ethical challenges of institutional conscience claims in pediatric care, particularly regarding refusals of life-sustaining treatment for neurologically devastated children. It argues that rigid, rules-based institutional policies risk undermining respectful dialogue with...

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Detalles Bibliográficos
Publicado en:American Journal of Bioethics Vol. 26; no. 7; pp. 80 - 83
Autores principales: Weaver, Meaghann S., Walter, Jennifer K.
Formato: commentary Journal Article
Publicado: Taylor & Francis Ltd Jul2026
Acceso en línea:Ver este registro en EBSCOhost
Descripción
Sumario:The article focuses on the ethical challenges of institutional conscience claims in pediatric care, particularly regarding refusals of life-sustaining treatment for neurologically devastated children. It argues that rigid, rules-based institutional policies risk undermining respectful dialogue with families, especially those from minoritized or marginalized backgrounds, and may erode parental authority and relational autonomy—a concept emphasizing the interconnectedness of decision-making within family and care relationships. Through two pediatric case examples, the article advocates for time-limited trials, interdisciplinary review, and culturally sensitive, values-based discussions that acknowledge prognostic uncertainty and diverse conceptions of a "good life." It concludes that fostering mutual respect and pluralism in healthcare decisions better supports families and protects vulnerable pediatric patients than categorical institutional refusals grounded solely in institutional conscience.