Assessing Unmet Social Needs in Multiple Sclerosis Care in Australia: A Qualitative Assessment of Feasibility, Barriers and Enablers.

Background: Unmet social needs (including housing, transport and social inclusion) contribute substantially to health outcomes, especially for people with long‐term health conditions such as multiple sclerosis (MS). Whether assessment of unmet social needs occurs in MS clinical care is unclear. This...

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Published in:Health Expectations Vol. 29; no. 3; pp. 1 - 14
Main Authors: Hawkins, Megan R., Learmonth, Yvonne C., Weld‐Blundell, Isabelle, Ayton, Darshini, Haartsen, Jodi, Kavanagh, Anne, Kalincik, Tomas, Klaic, Marlena, Marck, Claudia H.
Format: research tables/charts Journal Article
Published: Wiley-Blackwell Jun2026
Online Access:View this record in EBSCOhost
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        atl: Assessing Unmet Social Needs in Multiple Sclerosis Care in Australia: A Qualitative Assessment of Feasibility, Barriers and Enablers.
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          Hawkins, Megan R.
          Learmonth, Yvonne C.
          Weld‐Blundell, Isabelle
          Ayton, Darshini
          Haartsen, Jodi
          Kavanagh, Anne
          Kalincik, Tomas
          Klaic, Marlena
          Marck, Claudia H.
        affil: Disability and Health Unit, Centre for Health Policy, Melbourne School of Population and Global Health, The University of Melbourne, Melbourne Victoria,, Australia
      sug:
        subj:
          Multiple Sclerosis Therapy
          Social Determinants of Health
          Needs Assessment
          Health Screening
          Health Services Accessibility
          Physician Attitudes Evaluation
          Patient Attitudes Evaluation
          Human
          Male
          Female
          Adult
          Middle Age
          Australia
          Physicians
          Descriptive Research
          Qualitative Studies
          Exploratory Research
          Focus Groups
          Purposive Sample
          Snowball Sample
          Semi-Structured Interview
          Thematic Analysis
          Audiorecording
          Data Analysis Software
          Descriptive Statistics
          Clinical Assessment Tools
          Funding Source
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Male
          Female
      ab: Background: Unmet social needs (including housing, transport and social inclusion) contribute substantially to health outcomes, especially for people with long‐term health conditions such as multiple sclerosis (MS). Whether assessment of unmet social needs occurs in MS clinical care is unclear. This study aims to (1) understand current practices, (2) identify barriers and enablers to social needs assessments in MS care, and (3) explore the feasibility of social needs screening tools. Methods: This qualitative descriptive study comprised focus groups and interviews with clinicians, carers and people with MS in Australia. We inductively and deductively coded transcripts and used applied thematic analysis to identify themes, using COM‐B (Capability, Opportunity, Motivation, Behaviour) and Feasibility frameworks. Results: We collected data from 19 participants (11 clinicians and 8 lived‐experience participants). Participants reported inconsistent and unstructured social needs assessment in MS care. Barriers aligned with capability (lack of referral pathway knowledge), opportunity (resources) and motivation (belief in abilities, evidence of value and scepticism). Enablers aligned with capability (clinician rapport and self‐advocacy), opportunity (care coordination and self‐paced assessment), and motivation (mutual desire for positive patient outcomes). A social needs screening tool was considered acceptable, conditional on adequate resourcing and/or design to ensure identified needs can be addressed. Conclusion: Findings from this qualitative descriptive study suggest that the current integration of social care in MS healthcare in Australia is inadequate. We identified opportunities to develop and test a screening tool and supporting referral resources to identify and address unmet social needs in MS patients. Better integrated social and healthcare represents a promising avenue for improving comprehensive MS management. Patient or Public Contribution: The author team comprised people living with MS and people working in MS care or MS research. All authors contributed to the design of the study, including the focus group materials, the interpretation of the data during the analysis, and the reporting of the findings through reviewing and editing the manuscript.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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