Co‐Designing an Easy‐Read Adult Social Care Outcomes Measure for Older People: Approach to and Reflections on Involving People Living With Dementia and Their Supporters.
Background: In the UK, over half a million older people rely on publicly funded social care services to support their daily living needs. It is crucial to measure the quality of these services to ensure they meet the needs of those they support. The Adult Social Care Outcomes Toolkit (ASCOT) was dev...
| Publicado en: | Health Expectations Vol. 29; no. 3; pp. 1 - 12 |
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| Autores principales: | , , , , , , , |
| Formato: | pictorial questionnaire/scale research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jun2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=194811321&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 194811321 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Jun2026 vid: 29 iid: 3 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 194811321 194811321 194811321 10.1111/hex.70712 194811321 ppf: 1 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: Co‐Designing an Easy‐Read Adult Social Care Outcomes Measure for Older People: Approach to and Reflections on Involving People Living With Dementia and Their Supporters. aug: au: Mikelyte, Rasa Oliver, Keith Oliver, Rosemary Caiels, James Rand, Stacey Field, Elizabeth Webster, Lucy Towers, Ann‐Marie affil: Centre for Health Services Studies, University of Kent, Canterbury,, UK sug: subj: Dementia Psychosocial Factors Caregivers Psychosocial Factors Outcome Assessment Quality of Life Evaluation Social Work Service In Old Age Support, Social Dementia Patients Psychosocial Factors Reflection Collaboration Instrument Construction Questionnaires Health Services Accessibility Readability Evaluation Human Aged Quality of Health Care Health Care Delivery Patient Participation Cognition Activities of Daily Living Self Report Communication Patient Centered Care United Kingdom Interviews Empowerment Funding Source Aged: 65+ years ab: Background: In the UK, over half a million older people rely on publicly funded social care services to support their daily living needs. It is crucial to measure the quality of these services to ensure they meet the needs of those they support. The Adult Social Care Outcomes Toolkit (ASCOT) was developed to assess social care‐related quality of life (SCRQoL; Netten et al., 2012). However, many older individuals, particularly those living with dementia, face difficulties completing standard questionnaires (Aznar et al., 2021). Aim: This project aimed to enhance the accessibility of the ASCOT toolkit for older people, enabling more people to self‐report their experiences of social care. Methods: We employed a co‐design methodology, bringing together a working group of older adults, primarily those living with dementia, along with their carers/supporters, to adapt the ASCOT toolkit. The adaptation process involved six working group meetings. In between these meetings, three rounds of cognitive testing (Meadows, 2021) with 25 participants who had difficulties completing traditional questionnaires also took place, with findings brought back to the working group after each round, so they could further refine the toolkit in light of cognitive testing results. Results: The final adapted version of the ASCOT toolkit differs significantly from the original. The cognitive testing results demonstrate a considerable reduction in challenges experienced by participants between testing rounds, indicating a more accessible and user‐friendly tool. Implications: The findings from this project demonstrate that co‐designing outcome measures with older people, particularly those living with dementia, is both feasible and impactful. This work offers a replicable model for creating inclusive, accessible tools that amplify the voices of service users. Patient and Public Involvement: 8 older people, including those living with dementia, have co‐designed the new version of the tool over 6 meetings. Further meetings took place to jointly design dissemination materials. Working group members have co‐presented project findings at conferences and events, and two members have co‐authored this article. PPI were involved from the funding acquisition stage of this project. Two PPI members who were not part of the working group were part of the project steering group. pubtype: Academic Journal doctype: pictorial questionnaire/scale research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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