Factors associated with nonparticipation and loss to follow-up in bereavement research using data from a cohort of parents with a loss in pregnancy or the neonatal period.
Factors shaping participation in longitudinal cohorts may introduce bias, but there is a lack of research concerning participation patterns in cohorts of bereaved. Our aim was to study this in a longitudinal cohort of parents with a loss in pregnancy or during the neonatal period. Using data from th...
| Publicado en: | Death Studies Vol. 50; no. 7; pp. 1079 - 1090 |
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| Autores principales: | , , , , |
| Formato: | Artículo |
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Taylor & Francis Ltd
2026
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| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=194898205&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 194898205 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 07481187 DEA jtl: Death Studies issn: 07481187 maglogo: N pubinfo: dt: 2026 vid: 50 iid: 7 pid: 377 pub: Taylor & Francis Ltd artinfo: ui: 194898205 10.1080/07481187.2025.2469138 ppf: 1079 ppct: 11 formats: tig: atl: Factors associated with nonparticipation and loss to follow-up in bereavement research using data from a cohort of parents with a loss in pregnancy or the neonatal period. aug: au: Mørk, Sofie Möller, Sören O'Connor, Maja Henriksen, Tine Brink Hvidtjørn, Dorte affil: Department of Clinical Research, University of Southern Denmark, Odense, Denmark Department of Obstetrics and Gynecology, Odense University Hospital, Odense, Denmark Open Patient Data Explorative Network, Odense University Hospital, Odense, Denmark Department of Psychology and Behavioral Sciences, Unit for Bereavement Research, Aarhus University, Aarhus, Denmark Department of Clinical Medicine, Perinatal Epidemiology Research Unit, Aarhus University, Aarhus, Denmark Department of Clinical Medicine, Aarhus University, Aarhus, Denmark su: Denmark Post-traumatic stress disorder Human research subjects Mental illness Perinatal death Infant death Age distribution Bereavement Medical research Psychology of parents Educational attainment Secondary analysis Complicated grief Descriptive statistics Longitudinal method Data analysis software Confidence intervals sug: subj: Post-traumatic stress disorder Human research subjects Mental illness Perinatal death Infant death Age distribution Bereavement Medical research Psychology of parents Educational attainment Denmark Research and Development in the Physical, Engineering, and Life Sciences (except Biotechnology) Secondary analysis Complicated grief Descriptive statistics Longitudinal method Data analysis software Confidence intervals ab: Factors shaping participation in longitudinal cohorts may introduce bias, but there is a lack of research concerning participation patterns in cohorts of bereaved. Our aim was to study this in a longitudinal cohort of parents with a loss in pregnancy or during the neonatal period. Using data from the Danish national registers we identified all parents who experienced a pregnancy or neonatal loss in 2016–2018 and linked that with data on participants from the Life After the Loss cohort. Analyzing 725 parents, baseline participation was 25.7%, with 72.6% and 59.7% continuing at the seven- and 13-month follow-up. Partners and parents with lower education were underrepresented at baseline and at follow-up. Although not statistically significant, substantial underrepresentation of parents with mental health conditions and of parents who lived alone was observed at baseline. Although initial participation was low, after enrollment, most parents engaged in follow-up, minimizing the risk of attrition bias. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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