Being There: Danish Nurses' Lived Experiences of Companionship With Families in Home‐Based Paediatric Palliative Care in Regional Settings.
Background: Paediatric palliative care (PPC) is a relatively new field in many countries, including Denmark, where regional home‐based PPC teams were established between 2015 and 2016. While research on PPC is growing, the lived experiences of nurses providing care in the family home remain underexp...
| Publicado en: | Scandinavian Journal of Caring Sciences Vol. 40; no. 2; pp. 1 - 10 |
|---|---|
| Autores principales: | , |
| Formato: | research Journal Article |
| Publicado: |
Wiley-Blackwell
Jun2026
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=194946883&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 194946883 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 02839318 BD4 jtl: Scandinavian Journal of Caring Sciences issn: 02839318 maglogo: Y pubinfo: dt: Jun2026 vid: 40 iid: 2 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 194946883 194946883 194946883 10.1111/scs.70239 194946883 ppf: 1 ppct: 9 formats: tig: atl: Being There: Danish Nurses' Lived Experiences of Companionship With Families in Home‐Based Paediatric Palliative Care in Regional Settings. aug: au: Alm, Anne Beck, Malene affil: Department of Oncology, Center for Cancer and Organ Diseases, The University Hospital of Copenhagen, Copenhagen Ø, Denmark sug: subj: Professional-Family Relations Nurse Attitudes Evaluation Work Experiences Evaluation Palliative Care Nurses Psychosocial Factors Palliative Care Nursing Psychosocial Factors Home Health Care Psychosocial Factors Pediatric Care Nurse-Patient Relations Terminally Ill Patients In Infancy and Childhood Death In Infancy and Childhood Bereavement Human Nursing Knowledge Qualitative Studies Phenomenological Research Interviews Reflection Child Female Adult Middle Age Aged Denmark Interview Guides Thematic Analysis Audiorecording Task Performance and Analysis Appointments and Schedules Writing Family Support Professionalism Child: 6-12 years Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Female ab: Background: Paediatric palliative care (PPC) is a relatively new field in many countries, including Denmark, where regional home‐based PPC teams were established between 2015 and 2016. While research on PPC is growing, the lived experiences of nurses providing care in the family home remain underexplored. Understanding how nurses experience this form of care is essential for developing practices that support both families and professionals in this demanding field. Aim: This study asks what it is like for nurses to accompany children and families through illness, dying, and bereavement in the context of home‐based PPC. Method: A qualitative phenomenological–hermeneutical approach informed by Max van Manen guided the study. Ten nurses from the Danish regional PPC teams participated in individual phenomenological interviews. Analysis followed van Manen's holistic, selective, and detailed reflection, allowing meaning to emerge through attentive engagement with the lived experiences expressed in the interviews. Results: The analysis brought forward three ways in which the experience showed itself: The experience of coming close by walking alongside families; The experience of letting care arise through presence rather than action; The experience of sensing what is at stake. Conclusions: Nurses' accounts show that home‐based PPC unfolds through ways of being that move between doing and being present. Their care is shaped by the ability to come close as relationships develop, to remain with families when no further action is possible, and to sense what is lived but not spoken. These forms of attentiveness draw on professional experience as well as an openness to what the situation calls for, supporting families through illness, dying, and the time that follows. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|