Leveraging User Experience Design Expertise in Palliative Care Intervention Science.
Background: Palliative care interventions for children with serious illness require real-world design expertise to bring research to the bedside in ways that are engaging, effective, and feasible. Objective: To describe the collaborative process of bringing an evidence-based humanistic care interven...
| Publicado en: | Journal of Palliative Medicine Vol. 29; no. 7; pp. 880 - 887 |
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| Autores principales: | , , , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Mary Ann Liebert, Inc.
Jul2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=194993560&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 194993560 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10966218 C1U jtl: Journal of Palliative Medicine issn: 10966218 maglogo: N pubinfo: dt: Jul2026 vid: 29 iid: 7 pid: 1365 pub: Mary Ann Liebert, Inc. place: New Rochelle, New York artinfo: ui: 194993560 194993560 194993560 10.1177/10966218261434133 194993560 ppf: 880 ppct: 7 formats: tig: atl: Leveraging User Experience Design Expertise in Palliative Care Intervention Science. aug: au: Hawley, Caitlin N. Alcantra, Natasha Chen, Carolyn Feng, Yanlin Lattimore, Karlton Oh, Sua Rajeeva, Bhoomika Robinson, Flynn Ian Shenbanjo, Motolani Oslin, Ellie Bogetz, Jori affil: Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute, Seattle, Washington, USA. sug: subj: Palliative Care In Infancy and Childhood Quality Improvement Patient Satisfaction Collaboration Hospitals, Pediatric Humanism Patient Centered Care Implementation Science Human Child Seminars and Workshops Photography Storytelling Descriptive Statistics Child: 6-12 years ab: Background: Palliative care interventions for children with serious illness require real-world design expertise to bring research to the bedside in ways that are engaging, effective, and feasible. Objective: To describe the collaborative process of bringing an evidence-based humanistic care intervention, photo-narratives, through practical user experience (UX) design for future implementation at a children's hospital. Methods: The collaborative design process was completed at an academic university. Researchers at the affiliated children's hospital approached two teams of UX design graduate students to (1) further refine and (2) develop a technology-integrated implementation strategy for the photo-narrative intervention. Results: The researchers and teams met weekly to follow a project-specific seven-step UX design approach, including (1) framing project timeline and deliverables, (2) regulatory and access considerations, (3) understanding the problem and intervention, (4) data collection, (5) design constraints (information technology considerations, workflow), (6) low-fidelity prototyping, and (7) usability testing and high-fidelity prototyping. Conclusion: Collaboration between researchers and UX design teams can further the critical intervention design and prototyping that is essential to implementing successful real-world palliative care interventions. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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