The experiences of living with dementia within an under-served geographical area: a systematic review and qualitative synthesis.

Background Dementia affects millions globally and presents diverse challenges shaped by personal, social and environmental factors. People living in under-served rural, coastal and deprived communities often face additional barriers to diagnosis, care and support, limiting person-centred approaches....

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Publicado en:Age & Ageing Vol. 55; no. 6; pp. 1 - 14
Autores principales: Kay, Jessica, Rait, Greta, Burnand, Alice, Woodward, Abi, Littlejohns, Thomas, Armstrong, Megan
Formato: Artículo
Publicado: Oxford University Press / USA Jun2026
Materias:
Acceso en línea:Ver este registro en EBSCOhost
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        10.1093/ageing/afag190
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        atl: The experiences of living with dementia within an under-served geographical area: a systematic review and qualitative synthesis.
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          Kay, Jessica
          Rait, Greta
          Burnand, Alice
          Woodward, Abi
          Littlejohns, Thomas
          Armstrong, Megan
        affil:
          Research Department of Primary Care and Population Health, UCL Medical School (Royal Free Campus), University College London, London, United Kingdom of Great Britain and Northern Ireland
          Centre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University of London,  London, United Kingdom of Great Britain and Northern Ireland
          Nuffield of Department of Population Health, University of Oxford, Oxford, United Kingdom of Great Britain and Northern Ireland
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        Health services accessibility
        Privacy
        Population geography
        Patient-centered care
        Rural conditions
        Social support
        Patients' attitudes
        Social stigma
        Medical ethics
        Self-disclosure
        Old age
        Dementia prevention
        Research funding
        Systematic reviews
        MEDLINE
        Thematic analysis
        Medical databases
        Dementia
        Data analysis software
        Psychology information storage & retrieval systems
      sug:
        subj:
          Health services accessibility
          Privacy
          Population geography
          Patient-centered care
          Rural conditions
          Social support
          Patients' attitudes
          Social stigma
          Medical ethics
          Self-disclosure
          Old age
          Other Individual and Family Services
          Dementia prevention
          Research funding
          Systematic reviews
          MEDLINE
          Thematic analysis
          Medical databases
          Dementia
          Data analysis software
          Psychology information storage & retrieval systems
      keyword:
        copyrightHolder:British Geriatrics Society
        copyrightYear:2026
        dementia
        https://dx.doi.org/10.1093/ageing/afag190
        inLanguage:en
        older people
        publisher:Oxford University Press
        qualitative research
        sameAs:https://pubmed.ncbi.nlm.nih.gov/42341205/
        social stigma
        systematic review
        underserved areas
        copyrightHolder:British Geriatrics Society
        copyrightYear:2026
        dementia
        https://dx.doi.org/10.1093/ageing/afag190
        inLanguage:en
        older people
        publisher:Oxford University Press
        qualitative research
        sameAs:https://pubmed.ncbi.nlm.nih.gov/42341205/
        social stigma
        systematic review
        underserved areas
      ab: Background Dementia affects millions globally and presents diverse challenges shaped by personal, social and environmental factors. People living in under-served rural, coastal and deprived communities often face additional barriers to diagnosis, care and support, limiting person-centred approaches. These inequalities can negatively impact quality of life, social inclusion and health outcomes. Whilst dementia experiences have been widely studied, the influence of geographical context remains underexplored. Understanding this is essential to improving equitable, person-centred care across diverse settings. Methods MEDLINE, PsycInfo, Cochrane Library and Web of Science were searched from inception in February 2025 for qualitative studies on people's experiences of living with dementia in rural, coastal or deprived areas. The review was not limited by country or date. Data were coded and thematically synthesised using NVivo. Findings Seventy-three full texts were screened using Rayyan and 15 studies were included in the review. Thirteen studies were based in rural areas and two in deprived areas. No included studies were set in coastal areas. Four analytical themes were developed: navigating stigma, privacy and disclosure , navigating fragmented healthcare systems and services, lack of appropriate and accessible services and positive experiences of managing dementia. Discussion Key barriers to managing dementia included limited service availability, unsuitable support, stigma and logistical challenges. Findings underscored the need for person-centred, context-sensitive care that considers geographic, social and cultural factors. Future research should further explore diverse under-served settings to inform equitable dementia care particularly in deprived and coastal areas.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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