New horizons in advance care planning: narratives, identity and cultural humility.
Advance care planning (ACP) is considered important for patient-centred care in serious illness, yet evidence it benefits patients is inconsistent. This reflects a lack of clarity over how ACP interventions are supposed to achieve their intended goals and what these goals should be, leading to varia...
| Publicado en: | Age & Ageing Vol. 55; no. 6; pp. 1 - 11 |
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| Autores principales: | , , , , , , , , , |
| Formato: | Artículo |
| Publicado: |
Oxford University Press / USA
Jun2026
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| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=195099739&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 195099739 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 00020729 AGA jtl: Age & Ageing issn: 00020729 maglogo: N pubinfo: dt: Jun2026 vid: 55 iid: 6 pid: 622 pub: Oxford University Press / USA artinfo: ui: 195099739 10.1093/ageing/afag191 ppf: 1 ppct: 10 formats: tig: atl: New horizons in advance care planning: narratives, identity and cultural humility. aug: au: Hopkins, Sarah A Polak, Louisa Hoare, Sarah E Etkind, Simon N Stalley, Luke Lovick, Roberta Kuhn, Isla Simpson, Rhian Harwood, Rowan H Barclay, Stephen affil: Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK Department of Public Health and Primary Care, University of Cambridge, Cambridge, UKCambridge University Hospitals NHS Foundation Trust, Cambridge, UK Department of Sociology, University of Zurich, Zürich, ZH, Switzerland Patient representative, Great Yarmouth, UK Cambridge University Medical Library, School of Clinical Medicine, University of Cambridge, Cambridge, UK School of Health Sciences, Queens Medical Centre, University of Nottingham, Nottingham, UK su: Cultural awareness Group identity Occupational roles Psychological well-being Attitude (Psychology) Patient-centered care Patient-professional relations Terminal care Advance directives (Medical care) Old age Patient autonomy sug: subj: Cultural awareness Group identity Occupational roles Psychological well-being Attitude (Psychology) Patient-centered care Patient-professional relations Terminal care Advance directives (Medical care) Old age Patient autonomy keyword: ACP advance care planning copyrightHolder:British Geriatrics Society copyrightYear:2026 culture https://dx.doi.org/10.1093/ageing/afag191 identity inLanguage:en narrative older people publisher:Oxford University Press sameAs:https://pubmed.ncbi.nlm.nih.gov/42381391/ ACP advance care planning copyrightHolder:British Geriatrics Society copyrightYear:2026 culture https://dx.doi.org/10.1093/ageing/afag191 identity inLanguage:en narrative older people publisher:Oxford University Press sameAs:https://pubmed.ncbi.nlm.nih.gov/42381391/ ab: Advance care planning (ACP) is considered important for patient-centred care in serious illness, yet evidence it benefits patients is inconsistent. This reflects a lack of clarity over how ACP interventions are supposed to achieve their intended goals and what these goals should be, leading to variation in implementation. This article seeks to address this knowledge gap by focusing on the role of narratives. Although ACP draws on patients' illness narratives (their personal stories of illness, including hopes and fears), the role of these narratives is often unacknowledged. We systematically reviewed the evidence on narratives and ACP and synthesised the findings with broader multidisciplinary literature. Attending to patient narratives can be a route to achieving many goals of ACP (including preserving patient autonomy, strengthening relationships and preparing for end-of-life) and can help patients to maintain their identity, which is important for well-being but is disrupted by illness and frailty. The values underpinning ACP are culturally-specific, however, with less relevance for some patients: better appreciation of this is a step towards cultural humility and more equitable care. The role of clinicians in contributing to patient life narratives through ACP is controversial. Some argue that clinicians should shape their patient's narrative, helping them to make meaning at the end-of-life, while others have problematised expectations that patients tell, and clinicians facilitate, 'good death' stories. Synthesising existing knowledge provides clinicians with insights on how to approach end-of-life conversations through framing discussions around patient narratives and lays the foundations for future research exploring narrative approaches to ACP. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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