Participant Perspectives on Data Sharing in Clinical Craniofacial Research: Qualitative Interviews With Participants With Craniofacial Microsomia and Their Caregivers.
Objective: To describe the perspectives of participants and caregivers of pediatric participants on data sharing in clinical craniofacial research. Design: Qualitative interview study of research participants' attitudes about data sharing. Setting: One-to-one interviews via web conferencing. Patient...
| Publicado en: | Cleft Palate Craniofacial Journal Vol. 63; no. 8; pp. 2319 - 2330 |
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| Autores principales: | , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Sage Publications Inc.
Aug2026
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| Acceso en línea: | Ver este registro en EBSCOhost |