Dialogue matters. Exploring Deaf people's research experiences in Poland.

The meaningful engagement of Deaf people in research poses ethical challenges, yet Deaf people are systematically underrepresented in discussions on ethical research conduct. Our study explores experiences and opinions of Polish Deaf people about research through a bilingual open-ended online survey...

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Bibliographic Details
Published in:Journal of Deaf Studies & Deaf Education Vol. 31; no. 3; pp. 460 - 471
Main Authors: Krawczyk, Tomasz, Piasecki, Jan, Bołdys, Rafał, Butkiewicz, Barbara, Koper, Judyta, Kwoka, Bogusława, Kwoka, Franciszek, Rzadek, Karolina, Waligora, Marcin
Format: research tables/charts Journal Article
Published: Oxford University Press / USA Jul2026
Online Access:View this record in EBSCOhost
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      pub: Oxford University Press / USA
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          Krawczyk, Tomasz
          Piasecki, Jan
          Bołdys, Rafał
          Butkiewicz, Barbara
          Koper, Judyta
          Kwoka, Bogusława
          Kwoka, Franciszek
          Rzadek, Karolina
          Waligora, Marcin
        affil: Department of Bioethics and Health Psychology, Faculty of Health Sciences, Jagiellonian University Medical College, Michalowskiego 12, 31-126 Krakow, PolandDoctoral School of Medical and Health Sciences, Jagiellonian University Medical College, Sw. Lazarza 16, 31-530 Krakow, Poland
      sug:
        subj:
          Research Subjects Psychosocial Factors
          Deafness
          Life Experiences
          Multilingualism
          Persons with Hearing Disabilities Psychosocial Factors
          Deaf Culture
          Human
          Male
          Female
          Adolescence
          Adult
          Middle Age
          Aged
          Poland
          Surveys
          Sociodemographic Factors
          Thematic Analysis
          Health Services Needs and Demand
          Stakeholder Participation
          Privacy and Confidentiality
          Diversity, Equity, Inclusion
          Funding Source
          Attitude to Disability
          Adolescent: 13-18 years
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Aged: 65+ years
          Male
          Female
      ab: The meaningful engagement of Deaf people in research poses ethical challenges, yet Deaf people are systematically underrepresented in discussions on ethical research conduct. Our study explores experiences and opinions of Polish Deaf people about research through a bilingual open-ended online survey. We gathered 52 responses and analysed them in collaboration with a Deaf advisory group using an experiential approach to reflexive thematic analysis. We developed six themes, reflecting the challenges, needs and aspirations of Deaf people, embraced under one overarching theme: Dialogue matters. Our study highlights social and epistemic inequalities faced by Deaf people in research, as well as the need for greater accessibility and trust. We discuss how the Polish context both reflects and differs from the experiences of Deaf people from other countries. The findings may inform evidence-based recommendations for scientific cooperation between Deaf and hearing people.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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