A rapid realist review of interventions for parents of adults with intellectual/developmental disabilities.
Background and Objectives The lifespan of adults with an intellectual/developmental disability has increased. Their parents often provide caregiving for these adults. Few programs address the needs of these older parents, and even fewer have been reviewed for their effectiveness. Our purpose was to...
| Publicado en: | Gerontologist Vol. 66; no. 7; pp. 1 - 21 |
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| Autores principales: | , , |
| Formato: | Artículo |
| Publicado: |
Oxford University Press / USA
Jul2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=195281396&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 195281396 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 00169013 GET jtl: Gerontologist issn: 00169013 maglogo: N pubinfo: dt: Jul2026 vid: 66 iid: 7 pid: 622 pub: Oxford University Press / USA artinfo: ui: 195281396 10.1093/geront/gnag022 ppf: 1 ppct: 20 formats: tig: atl: A rapid realist review of interventions for parents of adults with intellectual/developmental disabilities. aug: au: Marquis, Sandra O'Leary, Renée Baumbusch, Jennifer affil: School of Nursing, University of British Columbia, Vancouver, British Columbia, Canada V6T 2B5 21st Century Literature Reviews, Victoria, British Columbia, Canada V8B 3B3 su: Income Evaluation of human services programs Mindfulness Affinity groups Intellectual disabilities Developmental disabilities Caregivers Parents of children with disabilities Psychology of caregivers Social support Family support People with disabilities Psychosocial factors Employment Research funding Endowments Educational outcomes Psychoeducation Systematic reviews MEDLINE Burden of care Expressive arts therapy Online information services Acceptance & commitment therapy sug: subj: Income Evaluation of human services programs Mindfulness Affinity groups Intellectual disabilities Developmental disabilities Caregivers Parents of children with disabilities Psychology of caregivers Social support Family support People with disabilities Psychosocial factors Employment Grantmaking Foundations Other Individual and Family Services Research funding Endowments Educational outcomes Psychoeducation Systematic reviews MEDLINE Burden of care Expressive arts therapy Online information services Acceptance & commitment therapy keyword: adult Caregiving copyrightHolder:The Gerontological Society of America copyrightYear:2026 developmental disabilities https://dx.doi.org/10.1093/geront/gnag022 inLanguage:en Intellectual/developmental disability parent Parents publisher:Oxford University Press sameAs:https://pubmed.ncbi.nlm.nih.gov/41818693/ Support programs adult Caregiving copyrightHolder:The Gerontological Society of America copyrightYear:2026 developmental disabilities https://dx.doi.org/10.1093/geront/gnag022 inLanguage:en Intellectual/developmental disability parent Parents publisher:Oxford University Press sameAs:https://pubmed.ncbi.nlm.nih.gov/41818693/ Support programs ab: Background and Objectives The lifespan of adults with an intellectual/developmental disability has increased. Their parents often provide caregiving for these adults. Few programs address the needs of these older parents, and even fewer have been reviewed for their effectiveness. Our purpose was to answer the question, what are the conditions and features of support programs or interventions that are effective in improving the psychological and social aspects of the lives of parents of adults who have an intellectual/developmental disability? Research Design and Methods The authors conducted a rapid realist review of interventions for parents of adults with an intellectual/developmental disability. We applied midrange theories of family systems, life course perspective, and caregiving to focus on the participant contexts, program mechanisms, and intervention outcomes that were effective. Results The interventions reviewed included psychoeducation, financial grants, mindfulness, acceptance and commitment therapy, peer support, expressive arts therapy, and institutional placement. All of the interventions reported some success in improving parent wellbeing. Discussion and Implications We developed five program theories: "Do not add to my burden," "I am in need of self-care," "My needs change as I age," "My life is complex," and "Peer knowledge and support are valuable to me." We also recommended that programs accommodate parents' time constraints, include other family members and caregivers and address the eventual transition of caregiving from parents to others. Program theories and our observations are offered to support the development of new interventions and to improve the effectiveness of existing programs. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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