Structural caregiving environments and gendered pathways to hospice at the end of life: evidence from Health and Retirement Study.

Background and Objectives Hospice is designed to support comfort-focused care at the end of life, yet enrollment often depends on whether supportive caregiving infrastructures are in place. Prior studies rely on single indicators such as living arrangements, offering limited insight into the structu...

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Publicado en:Gerontologist Vol. 66; no. 7; pp. 1 - 12
Autores principales: Dong, Yanjun, Wang, Kun, Rizzo, Victoria M, Zhang, Min, Kang, Qing
Formato: Artículo
Publicado: Oxford University Press / USA Jul2026
Materias:
Acceso en línea:Ver este registro en EBSCOhost
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        10.1093/geront/gnag073
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        atl: Structural caregiving environments and gendered pathways to hospice at the end of life: evidence from Health and Retirement Study.
      aug:
        au:
          Dong, Yanjun
          Wang, Kun
          Rizzo, Victoria M
          Zhang, Min
          Kang, Qing
        affil:
          School of Social Welfare, College of Integrated Health Sciences, University at Albany, State University of New York, Albany, New York, United StatesCenter for Healthy Aging, University at Albany, State University of New York, Albany, New York, United States
          Department of Social Work, College of Arts and Sciences, University of Alabama at Birmingham, Birmingham, Alabama, United States
          Public Management, Krieger School of Arts and Science, John Hopkins University, Washington, DC, United States
          Gerontology Personnel Development Committee, China Association of Gerontology and Geriatrics, Beijing, China
      su:
        Elder care
        Health services accessibility
        Sex distribution
        Caring
        Health
        Retirement
        Home environment
        Health facilities
        Hospice care
        Old age
        Medical care use
        Statistical correlation
        Secondary analysis
        T-test (Statistics)
        Multiple regression analysis
        Scientific observation
        Multivariate analysis
        Descriptive statistics
        Chi-squared test
        Odds ratio
        Research
        Confidence intervals
        Data analysis software
      sug:
        subj:
          Elder care
          Health services accessibility
          Sex distribution
          Caring
          Health
          Retirement
          Home environment
          Health facilities
          Hospice care
          Old age
          Continuing Care Retirement Communities
          All Other Outpatient Care Centers
          Nursing Care Facilities (Skilled Nursing Facilities)
          Home Health Care Services
          Medical care use
          Statistical correlation
          Secondary analysis
          T-test (Statistics)
          Multiple regression analysis
          Scientific observation
          Multivariate analysis
          Descriptive statistics
          Chi-squared test
          Odds ratio
          Research
          Confidence intervals
          Data analysis software
      keyword:
        aged
        Caregiving environments
        copyrightHolder:The Gerontological Society of America
        copyrightYear:2026
        end-of-life care
        erosion
        Formal care
        gender
        Gender differences
        hospice
        hrs trial
        https://dx.doi.org/10.1093/geront/gnag073
        Informal care
        inLanguage:en
        publisher:Oxford University Press
        sameAs:https://pubmed.ncbi.nlm.nih.gov/42054580/
        terminally ill
        aged
        Caregiving environments
        copyrightHolder:The Gerontological Society of America
        copyrightYear:2026
        end-of-life care
        erosion
        Formal care
        gender
        Gender differences
        hospice
        hrs trial
        https://dx.doi.org/10.1093/geront/gnag073
        Informal care
        inLanguage:en
        publisher:Oxford University Press
        sameAs:https://pubmed.ncbi.nlm.nih.gov/42054580/
        terminally ill
      ab: Background and Objectives Hospice is designed to support comfort-focused care at the end of life, yet enrollment often depends on whether supportive caregiving infrastructures are in place. Prior studies rely on single indicators such as living arrangements, offering limited insight into the structural care environments that shape hospice feasibility. This study conceptualizes end-of-life care environments as graded structural positions: care formalization (how care is organized across household and institutional settings) and care scarcity (the availability of hands-on support) and examines their associations with hospice use among older decedents, including gender differences shaped by gendered life-course trajectories. Research Design and Methods Using nationally representative data from the Health and Retirement Study Harmonized End-of-Life Interview (1994–2021; N  = 12,477), we estimated multivariable logistic regression models of hospice use in the last year of life. Results Occupying more formalized structural care positions was associated with greater odds of hospice use (OR = 1.39), whereas greater care scarcity was associated with lower odds (OR = 0.69). Gender moderated both associations: the facilitating effect of formalization was weaker for women (OR = 0.87), while the constraining effect of scarcity was attenuated for women (OR = 1.20), indicating steeper structural gradients among men. Discussion and Implications Hospice use is embedded within structurally patterned caregiving ecologies rather than driven solely by clinical trajectories or preferences. Erosion of support may constrain hospice access, whereas more formalized care settings may enhance referral and coordination. Strengthening caregiving infrastructures and targeting older adults experiencing care scarcity may promote more equitable end-of-life care.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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