PEEC: The Protected Entities Ethics Checklist for Collecting Speech Data From Vulnerable Clinical Populations.

Purpose: The rapid advancement of automatic speech recognition (ASR) and natural language processing technologies has created significant opportunities for clinical applications within speech and language disorders, yet these capabilities remain largely confined to high-resource languages and popula...

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Publicado en:Journal of Speech, Language & Hearing Research Vol. 69; no. 7; pp. 2997 - 3018
Autores principales: Choi, Anna Seo Gyeong, Cho, Sunghye, Nowenstein, Iris
Formato: Artículo
Publicado: American Speech-Language-Hearing Association Jul2026
Materias:
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jul2026
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      pub: American Speech-Language-Hearing Association
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        10.1044/2026_JSLHR-25-00540
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        atl: PEEC: The Protected Entities Ethics Checklist for Collecting Speech Data From Vulnerable Clinical Populations.
      aug:
        au:
          Choi, Anna Seo Gyeong
          Cho, Sunghye
          Nowenstein, Iris
        affil:
          Department of Information Science, Cornell University, Ithaca, NY.
          Linguistic Data Consortium, Department of Linguistics, University of Pennsylvania, PA.
          Department of Icelandic and Comparative Cultural Studies, University of Iceland, Reykjavik.
      su:
        Cultural identity
        Documentation
        Artificial intelligence
        Privacy
        Socioeconomic factors
        Communicative disorders
        Informed consent (Medical law)
        Research ethics
        Medical ethics
        Transcultural medical care
        Automatic speech recognition
        Data management
        Speech-language pathology
        Natural language processing
        Acquisition of data
        Conceptual structures
        Cognition disorders
        Algorithms
      sug:
        subj:
          Cultural identity
          Documentation
          Artificial intelligence
          Privacy
          Socioeconomic factors
          Communicative disorders
          Informed consent (Medical law)
          Research ethics
          Medical ethics
          Transcultural medical care
          Automatic speech recognition
          Data management
          Speech-language pathology
          Natural language processing
          Acquisition of data
          Conceptual structures
          Cognition disorders
          Algorithms
      ab: Purpose: The rapid advancement of automatic speech recognition (ASR) and natural language processing technologies has created significant opportunities for clinical applications within speech and language disorders, yet these capabilities remain largely confined to high-resource languages and populations. As research communities work to address these inequities through inclusive speech data collection, the intersection of clinical vulnerability, linguistic diversity, and emerging speech and language technologies creates ethical considerations that are rarely addressed by existing guidelines. Ethical data collection practices affect the fairness and bias profiles of automatic speech and language analysis systems trained on these data, creating a foundational link between participant protection and algorithmic justice. Method: This article introduces the Protected Entities Ethics Checklist (PEEC), a comprehensive framework specifically designed for researchers collecting speech and language data from populations requiring enhanced protections. The framework addresses three core domains: participant protection and consent, data collection standards, and compliance implementation. Critically, the PEEC situates ethical data collection as a prerequisite for developing fair ASR systems, recognizing that procedural justice in research must precede algorithmic fairness. Results: The PEEC framework provides structured guidance for ethical research with protected entities including children, elderly adults with cognitive changes, individuals with communication disorders, and marginalized communities. It offers population-specific consent mechanisms, enhanced data protection measures, systematic quality assurance procedures, and explicit guidance on technical considerations for ASR applications while maintaining flexibility for diverse research contexts. Conclusions: Ethical treatment of research participants is inextricably linked to algorithmic fairness in speech technology development. The PEEC framework argues that procedural justice in data collection is a prerequisite for achieving fair AI systems, establishing the necessary ethical foundation for subsequent technological development in clinical speech research. By ensuring equitable and respectful data collection practices, we create the foundation for ASR systems that perform equitably across diverse populations.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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