A group respite intervention for family caregivers of children living with special needs.
As a family caregiver, parents of children living with special needs are at higher risk for exhaustion, stress, and social isolation, and the challenges can impact both the child and family's physical and emotional well-being. The purpose of this study was to evaluate self-reported stress levels of...
| Publicado en: | Journal of Pediatric Nursing Vol. 89; pp. 58 - 67 |
|---|---|
| Autores principales: | , , , , |
| Formato: | clinical trial research Journal Article |
| Publicado: |
W B Saunders
Jul2026
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=195310523&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 195310523 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 08825963 4CE jtl: Journal of Pediatric Nursing issn: 08825963 maglogo: N pubinfo: dt: Jul2026 vid: 89 pid: 1351 pub: W B Saunders place: Philadelphia, Pennsylvania artinfo: ui: 195310523 195310523 195310523 10.1016/j.pedn.2026.03.044 195310523 ppf: 58 ppct: 9 formats: tig: atl: A group respite intervention for family caregivers of children living with special needs. aug: au: McGrane, Christine Martins, Diane C. Geyer, David Cohen, Steven A. DeSanto-Madeya, Susan affil: College of Nursing, University of Rhode Island, RI, USA sug: subj: Parents of Children with Disabilities Psychosocial Factors Caregivers Psychosocial Factors Caregiver Attitudes Evaluation Stress, Psychological Prevention and Control Respite Care Methods Treatment Outcomes Human Female Male Child Pilot Studies Self Report Pretest-Posttest Design Children with Disabilities Family Attitudes Evaluation Family Psychosocial Factors Clinical Trials Quasi-Experimental Studies Questionnaires Paired T-Tests Thematic Analysis Safety Trust Time Descriptive Statistics Self Care Task Performance and Analysis Family Role Child: 6-12 years Female Male ab: As a family caregiver, parents of children living with special needs are at higher risk for exhaustion, stress, and social isolation, and the challenges can impact both the child and family's physical and emotional well-being. The purpose of this study was to evaluate self-reported stress levels of parents pre and post a respite intervention and to explore the family caregivers' perspectives on their respite experiences. This single-group pretest-posttest quasi-experimental design pilot study evaluated the effectiveness of a 12-week group respite intervention on stress among 16 family caregivers of children with special needs. The Kingston Caregiver Stress Survey (KCSS) was administered pre- and post-intervention and paired t -tests revealed a significant reduction in stress scores. Post intervention interviews further highlighted themes of safety, trust, and time to spend on non-caregiving activities. KCSS scores showed statistical significance, with a p -value 0.001 and t-score 4.51, illustrating a mean reduction in overall parental stress by 9.53 points from pre to post intervention. Sub-categories within the highlighted themes included self-care, accomplishing needed or wanted tasks, and focusing on others. The overwhelming finding was the high level of stress among parents, a positive response to a respite program as a stress reducer, and their expressed need for more respite services. Nurses are uniquely positioned to support the family caregiver role and ensure their sustainability into future family life through clinical work, education, advocacy and research. • 94% of participants showed a reduction in their total stress score from pre to post group respite intervention. • Participants noted the benefits of the respite program to be feelings of safety, and time for self and others. • This study illuminated the heart-felt struggles of parents searching for qualified care and services for their children. pubtype: Academic Journal doctype: clinical trial research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|