Quality of life and research benefit and burden in siblings of children with life-limiting conditions: a prospective multicentre cohort study.

Detalles Bibliográficos
Publicado en:Journal of Patient-Reported Outcomes Vol. 10; no. 1; pp. 1 - 12
Autores principales: Gerber, Anne-Kathrin, Zimmermann, Karin, Widler, Michèle, Simon, Michael, Weid, Nicolas von der, Mitterer, Stefan, Bergsträsser, Eva
Formato: research tables/charts Journal Article
Publicado: Springer Nature 5/23/2026
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=195499715&site=ehost-live
header:
  @attributes:
    shortDbName: ccm
    uiTerm: 195499715
    longDbName: CINAHL Complete
    uiTag: AN
  controlInfo:
    bkinfo:
    dissinfo:
    jinfo:
      jid:
        25098020
        LQUS
      jtl: Journal of Patient-Reported Outcomes
      issn: 25098020
      maglogo: N
    pubinfo:
      dt: 5/23/2026
      vid: 10
      iid: 1
      pid: 237
      pub: Springer Nature
      place: New York, New York
    artinfo:
      ui:
        195499715
        195499715
        195499715
        10.1186/s41687-026-01096-z
        195499715
      ppf: 1
      ppct: 11
      formats:
      tig:
        atl: Quality of life and research benefit and burden in siblings of children with life-limiting conditions: a prospective multicentre cohort study.
      aug:
        au:
          Gerber, Anne-Kathrin
          Zimmermann, Karin
          Widler, Michèle
          Simon, Michael
          Weid, Nicolas von der
          Mitterer, Stefan
          Bergsträsser, Eva
        affil: https://ror.org/02s6k3f65 Institute of Nursing Science, Department of Public Health, University of Basel, Bernoullistrasse 28, 4056, Basel, Switzerland
      sug:
        subj:
          Terminally Ill Patients In Infancy and Childhood
          Quality of Life Evaluation
          Siblings Psychosocial Factors
          Research Subjects Psychosocial Factors
          Palliative Care
          Bereavement
          Sweden
          Funding Source
          Human
          Male
          Female
          Child
          Adolescence
          Prospective Studies
          Multicenter Studies
          Descriptive Statistics
          Clinical Assessment Tools
          Fisher's Exact Test
          Odds Ratio
          Mann-Whitney U Test
          Data Analysis Software
          Support, Psychosocial
          Self Report
          Psychological Well-Being
          Child: 6-12 years
          Adolescent: 13-18 years
          Male
          Female
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
      ab:
    language: English
    refInfo:
    holdings:
      @attributes:
        islocal: N