Family Navigation for Children with Autism: A Scoping Review of Quantitative and Qualitative Evidence.

Family navigation (FN) has emerged as a promising intervention for reducing barriers and addressing social and economic inequities in autism service delivery. Little is known regarding the implementation and effectiveness of FN for children with autism. The aims of this scoping review are to: (1) su...

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Published in:Journal of Autism & Developmental Disorders Vol. 56; no. 8; pp. 3032 - 3055
Main Authors: Lin, Ingrid Y., Morgan, Anna C., Stave, Christopher D., Feldman, Heidi M., Huffman, Lynne C.
Format: research systematic review tables/charts Journal Article
Published: Springer Nature Aug2026
Online Access:View this record in EBSCOhost
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      dt: Aug2026
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      pub: Springer Nature
      place: New York, New York
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        atl: Family Navigation for Children with Autism: A Scoping Review of Quantitative and Qualitative Evidence.
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          Lin, Ingrid Y.
          Morgan, Anna C.
          Stave, Christopher D.
          Feldman, Heidi M.
          Huffman, Lynne C.
        affil: https://ror.org/00f54p054 Division of Developmental-Behavioral Pediatrics, Stanford University, 3145 Porter Dr., Wing B, 94304, Palo Alto, CA, USA
      sug:
        subj:
          Autism Spectrum Disorder In Infancy and Childhood
          Patient Navigation Evaluation
          Family Role Evaluation
          Socioeconomic Factors
          Health Inequities
          Health Care Delivery
          Funding Source
          Human
          Scoping Review
          Descriptive Statistics
          Child
          PubMed
          Embase
          CINAHL Database
          Health Knowledge
          Health Resource Utilization
          Health Services Accessibility
          Child Development
          Family Support
          Checklists
          Child: 6-12 years
      ab: Family navigation (FN) has emerged as a promising intervention for reducing barriers and addressing social and economic inequities in autism service delivery. Little is known regarding the implementation and effectiveness of FN for children with autism. The aims of this scoping review are to: (1) summarize the breadth, quantity, and characteristics of the existing literature on FN for children diagnosed with autism; (2) describe the models and outcomes of FN for this population; and (3) identify knowledge gaps and provide directions for future research. Authors used Arksey and O'Malley's methodological framework for scoping reviews. Searches were conducted in PubMed, CINAHL, Embase, Social Services Abstracts, and Web of Science, resulting in identification of 308 papers. Two independent raters completed title/abstract and full-text screenings. Data was extracted using a researcher-developed tool. Results synthesis involved content and construct analysis and descriptive numerical summaries. 17 publications met inclusion criteria. Among these, seven studies evaluated FN models delivered by professional or peer navigators. Three studies investigated FN tools. The remaining seven papers included five qualitative and two mixed methods studies that provided valuable insights on improving FN programs. Overall, studies on FN models reported positive impacts on family activation and well-being, knowledge, and service access and utilization. None addressed improvements in child developmental status or behavioral profiles. FN is a promising intervention for improving family outcomes and increasing service access and utilization. Further research is needed to establish best practices, identify child- and family-centered outcome metrics, and promote scalability and sustainability.
      pubtype: Academic Journal
      doctype:
        research
        systematic review
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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