Experiences of Homecare Workers Delivering Social Care at End‐of‐Life: Insights From a Qualitative Multiple Perspective Study.

Social homecare workers (HCWs) play important roles in supporting people with care and support needs who wish to remain at home when approaching end‐of‐life. Given the difficulties in recruiting and retaining staff within the homecare sector and the challenging nature of end‐of‐life care, it is esse...

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Publicado en:Health & Social Care in the Community Vol. 2026; pp. 1 - 16
Autores principales: White, Caroline, Forward, Cat, Bayley, Zana, Elliott-Button, Helene, Krygier, Justine, Bravington, Alison, Begum, Samina, Bothma, Joan, Hussain, Jamilla, Johnson, Miriam J., Moss, Colin, Pearson, Mark, Roberts, Helen, Taylor, Paul, Wray, Jane, Walker, Liz, Aydin, Mucahit
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell 7/30/2026
Acceso en línea:Ver este registro en EBSCOhost
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        atl: Experiences of Homecare Workers Delivering Social Care at End‐of‐Life: Insights From a Qualitative Multiple Perspective Study.
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          White, Caroline
          Forward, Cat
          Bayley, Zana
          Elliott-Button, Helene
          Krygier, Justine
          Bravington, Alison
          Begum, Samina
          Bothma, Joan
          Hussain, Jamilla
          Johnson, Miriam J.
          Moss, Colin
          Pearson, Mark
          Roberts, Helen
          Taylor, Paul
          Wray, Jane
          Walker, Liz
          Aydin, Mucahit
        affil: Wolfson Palliative Care Research Centre,, Hull York Medical School,, University of Hull,, Hull, UK, hull.ac.uk
      sug:
        subj:
          Terminal Care
          Home Health Care Psychosocial Factors
          Attitude of Health Personnel Evaluation
          Work Experiences Evaluation
          Human
          Male
          Female
          Adult
          England
          Qualitative Studies
          Purposive Sample
          Semi-Structured Interview
          Thematic Analysis
          Terminally Ill Patients
          Funding Source
          Bereavement
          Support, Psychosocial
          Dementia
          Neoplasms
          Frailty Syndrome
          Professional Role
          Adult: 19-44 years
          Male
          Female
      ab: Social homecare workers (HCWs) play important roles in supporting people with care and support needs who wish to remain at home when approaching end‐of‐life. Given the difficulties in recruiting and retaining staff within the homecare sector and the challenging nature of end‐of‐life care, it is essential to understand the experiences and needs of this workforce and to recognise the challenges they face and support they require. This paper reports findings in respect of the experiences of HCWs providing end‐of‐life care. The data reported here is part of a study which aimed to inform improvements to the quality and sustainability of homecare at end‐of‐life and to develop training resources. A multiple case study approach was undertaken within three contrasting sites in England, delineated by local authority boundaries and chosen to reflect different demographic characteristics. Semistructured interviews were carried out with 133 participants who included HCWs, managers, clients, carers (families/friends), health and social care practitioners, and service commissioners. Interviews were supported by Pictor, a visual elicitation method used to map networks and relationships. Data were analysed using reflexive thematic and matrix analyses. The findings presented here highlight three themes in respect of HCW experiences when providing care at end‐of‐life: unique privileges and challenges; relational aspects of care important at end‐of‐life; and the multiagency challenges and opportunities experienced. Wider factors such as health and social care policy and the care sector environment, both of which influence HCW experiences, were also considered. The findings are discussed in the context of an adaptation of Bronfenbrenner's Ecological Systems Theory to explore complexity in end‐of‐life care, and are related to current evidence with suggestions made for policy, practice and future research.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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