Development of an easy-read version of the Brain Injury associated Visual Impairment - Impact Questionnaire (BIVI-IQ).

Objective: The Brain Injury associated Visual Impairment - Impact Questionnaire (BIVI-IQ) was developed to measure the impact of post-brain injury visual impairment. Communication and cognitive impairments are common brain injury sequelae and a barrier to completing standard patient reported outcome...

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Publicado en:Clinical Rehabilitation Vol. 40; no. 8; pp. 1035 - 1049
Autores principales: Hepworth, Lauren R, Howard, Claire, Rockliffe, Janet, Kirkham, Jamie J, Pearl, Gill, Rowe, Fiona J
Formato: pictorial research tables/charts Journal Article
Publicado: Sage Publications Inc. Aug2026
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Aug2026
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      pub: Sage Publications Inc.
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        atl: Development of an easy-read version of the Brain Injury associated Visual Impairment - Impact Questionnaire (BIVI-IQ).
      aug:
        au:
          Hepworth, Lauren R
          Howard, Claire
          Rockliffe, Janet
          Kirkham, Jamie J
          Pearl, Gill
          Rowe, Fiona J
        affil: Institute of Population Health, University of Liverpool, Liverpool, UK
      sug:
        subj:
          Brain Injuries Complications
          Stroke Complications
          Vision Disorders Etiology
          Instrument Construction
          Self Report
          Vision Disorders Therapy
          Quality of Life
          Patient-Reported Outcomes
          Aphasia Rehabilitation
          Cognition Disorders Rehabilitation
          Human
          Funding Source
          Male
          Female
          Adult
          Middle Age
          Aged
          Stroke Patients
          Validation Studies
          Questionnaires
          Pilot Studies
          Reading
          Descriptive Statistics
          Data Analysis Software
          Spearman's Rank Correlation Coefficient
          kappa Statistic
          Sensitivity and Specificity
          Comparative Studies
          Communicative Disorders Rehabilitation
          Content Validity
          Psychometrics Evaluation
          Access to Information
          Health Information
          Reliability
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Aged: 65+ years
          Male
          Female
      ab: Objective: The Brain Injury associated Visual Impairment - Impact Questionnaire (BIVI-IQ) was developed to measure the impact of post-brain injury visual impairment. Communication and cognitive impairments are common brain injury sequelae and a barrier to completing standard patient reported outcome measures. The objective of this study was to develop and refine an easy-read version in order to meet recommendations to promote self-reporting. Design: Easy-read version development involved stakeholder input at several meetings. An iterative refinement process was used, involving a cognitive interview, until no new issues were identified. Participants: Stroke survivors with visual impairment and/or aphasia and relevant healthcare professional were involved in the development stage. The clinical study recruited 12 stroke survivors with visual impairment. Main measures: Participants completed the easy-read and standard versions. The researcher documented observations and time taken. Analysis assessed association and agreement between the two versions. Results: Development considered the structure, image selection and key words. Four iterations were used before five consecutive participants reported no new issues. Image amendments involved replacing four, revising four and adding three across eight of the 13 items. A preference for the easy-read version was reported by 45.5% completing both questionnaires (n = 11). A significant, strong positive correlation was found between the easy-read and standard version total scores. Weighted Kappa found significant agreement between 12 items. Conclusions: The easy-read version, using images to support the question wording, will increase accessibility for brain injury survivors with communication and/or cognitive difficulties. It is acceptable and further evaluation of this version is now required.
      pubtype: Academic Journal
      doctype:
        pictorial
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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