What Factors Have Been the Most Helpful and Harmful and When? Identifying Key Impacts on Psychosocial Development According to Autistic Adults and Caregivers.
Few studies have asked autistic adults and caregivers directly about what has most positively and negatively impacted their lives. This study sought to: (a) identify positive and negative factors experienced by autistic adults and caregivers; (b) test for within-subject differences in endorsement of...
| Publicado en: | Journal of Autism & Developmental Disorders Vol. 56; no. 9; pp. 3456 - 3473 |
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| Autores principales: | , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Springer Nature
Sep2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=195843182&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 195843182 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 01623257 AUT jtl: Journal of Autism & Developmental Disorders issn: 01623257 maglogo: N pubinfo: dt: Sep2026 vid: 56 iid: 9 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 195843182 185026881 195843182 195843182 10.1007/s10803-025-06800-4 195843182 ppf: 3456 ppct: 17 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: What Factors Have Been the Most Helpful and Harmful and When? Identifying Key Impacts on Psychosocial Development According to Autistic Adults and Caregivers. aug: au: Lerner, Juliette E. Schiltz, Hillary Schisterman, Noa Ziegler, Sonja Lord, Catherine affil: https://ror.org/046rm7j60 Semel Institute for Neuroscience and Human Behavior, University of California, Los Angeles, 760 Westwood Plaza, Suite 68-217, 90024, Los Angeles, CA, USA sug: subj: Personal Growth Adaptation, Psychological Autism Spectrum Disorder In Adulthood Caregiver Attitudes Persons with Disabilities Psychosocial Factors Cognition Adverse Childhood Experiences Complications Human Multimethod Studies Interviews United States Support, Psychosocial Patient Education Scales Descriptive Statistics Data Analysis Software Post Hoc Analysis McNemar's Test Leisure Activities Peer Group Autonomy Bullying Victims Family Conflict Adult Middle Age Aged Male Female Content Analysis Funding Source Questionnaires Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Male Female ab: Few studies have asked autistic adults and caregivers directly about what has most positively and negatively impacted their lives. This study sought to: (a) identify positive and negative factors experienced by autistic adults and caregivers; (b) test for within-subject differences in endorsement of promotive factors reported specific to four stages of development; and (c) test for differences in factors between adults with varying cognitive ability (i.e., less cognitively able [LCA; verbal IQ < 70] and more cognitively able [MCA; verbal IQ ≥ 70]). Participants included 91 autistic adults and caregivers. Autistic adults' VIQs ranged from 4 to 139. Participants completed a modified version of the Social/Emotional Functioning Interview which consists of open-ended questions about positive and negative factors experienced across development. Autistic adults and caregivers, regardless of cognitive abilities, frequently reported people supports as more helpful than specific services, aspects of education, or generative activities from early childhood through adulthood. For both cognitive groups, generative activities were increasingly important after childhood. Services were more frequently identified as helpful by LCA caregivers in adulthood, while education was reported more by MCA caregivers and autistic adults. Differences by cognitive ability in negative factors included that more LCA caregivers reported poorly prepared professionals/caregivers as disruptive, while more MCA caregivers and autistic adults reported family conflict and bullying. Positive and negative factors identified through interviews of lived experiences can inform targeted care based on strengths and needs across cognitive abilities and life stages. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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