Novel CTNNB1 Gene Variants in Spanish CTNNB1 Syndrome Patients: Clinical and Psychological Manifestations.

CTNNB1 Syndrome is a neurodevelopmental disorder caused by de novo pathogenic variants characterized by global cognitive impairment, microcephaly, speech and motor delay, abnormal muscle tone, ophthalmologic impairments, behaviour problems and autistic spectrum disorder (ASD) symptoms. The aim of th...

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Publicado en:Journal of Autism & Developmental Disorders Vol. 56; no. 9; pp. 3655 - 3670
Autores principales: Pallarès-Sastre, Mercè, Amayra, Imanol, Pulido, Rafael, Nunes-Xavier, Caroline E., Bañuelos, Sonia, Cavaliere, Fabio, García, Maitane
Formato: research tables/charts Journal Article
Publicado: Springer Nature Sep2026
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Sep2026
      vid: 56
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      pub: Springer Nature
      place: New York, New York
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        10.1007/s10803-025-06829-5
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        atl: Novel CTNNB1 Gene Variants in Spanish CTNNB1 Syndrome Patients: Clinical and Psychological Manifestations.
      aug:
        au:
          Pallarès-Sastre, Mercè
          Amayra, Imanol
          Pulido, Rafael
          Nunes-Xavier, Caroline E.
          Bañuelos, Sonia
          Cavaliere, Fabio
          García, Maitane
        affil: https://ror.org/00ne6sr39 Neuro-e-Motion Research Team, Department of Psychology, Faculty of Health Sciences, University of Deusto, Avenida de las Universidades 24, Deusto, 48007, Bilbao, Spain
      sug:
        subj:
          Mental Disorders Diagnosed in Childhood
          Genetic Variation Spain
          Disease Attributes
          Human
          Male
          Female
          Child, Preschool
          Child
          Adolescence
          Spain
          Cross Sectional Studies
          Maternal Age
          Adult
          Autism Spectrum Disorder
          Developmental Disabilities
          Motor Neuron Diseases
          Rare Diseases
          Questionnaires
          Interviews
          Scales
          Test-Retest Reliability
          Data Analysis Software
          Mann-Whitney U Test
          Spearman's Rank Correlation Coefficient
          Wilcoxon Signed Rank Test
          Funding Source
          Cognition Disorders
          Microcephaly
          Speech Disorders
          Sleep Disorders
          Activities of Daily Living
          Child, Preschool: 2-5 years
          Child: 6-12 years
          Adolescent: 13-18 years
          Adult: 19-44 years
          Male
          Female
      ab: CTNNB1 Syndrome is a neurodevelopmental disorder caused by de novo pathogenic variants characterized by global cognitive impairment, microcephaly, speech and motor delay, abnormal muscle tone, ophthalmologic impairments, behaviour problems and autistic spectrum disorder (ASD) symptoms. The aim of this study is to carry out a thorough clinical and psychological characterization of Spanish CTNNB1 syndrome patients. We used standard clinical assessment instruments and an ad hoc questionnaire to measure motor functioning, neurodevelopmental milestones, sleep problems, daily life activities, behavioural problems, communication and speech impairments, eating disorders and autistic features in 25 participants with CTNNB1 syndrome (15 females, 10 males; mean age 7.1 ± 4.1). Main clinical manifestations reported were microcephaly, motor impairment, sight problems, sleep disturbances and sensorial problems. Attainment of developmental milestones indicated motoric, language and daily living skills to be generally delayed. All participants had adaptative skills below their chronological age, even though verbal individuals had better functioning compared to nonverbal. Regarding behaviour impairments, CTNNB1 syndrome patients scored significantly high at internalizing and externalizing behavioural problems. Additionally, about 60% presented symptoms of ASD. Our findings have important implications for the psychotherapeutic and clinical approaches of CTNNB1 syndrome patients. We show the importance of early stimulation, given that an early attainment of developmental milestones is related to a current better function of many clinical variables. Moreover, previous underrated symptoms such as sleep problems, impaired adaptative skills and high rates of behavioural symptoms should be taken into consideration due to the harmful impact that have on every day life.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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