Multidisciplinary recommendations for palliative and supportive care in Creutzfeldt-Jakob disease and related disorders.

Prion diseases, of which Creutzfeldt-Jakob disease is the most common, are fatal neurodegenerative disorders and are often rapidly progressive. They are associated with a significant palliative care burden for patients and families, ranging from prognostic uncertainty to complex symptom management t...

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Bibliographic Details
Published in:	Age & Ageing Vol. 55; no. 7; pp. 1 - 19
Main Authors:	Ng, Melissa, Grundy, Anna, Appleby, Brian, Awe, Terri, Carey, Matthew, Chan, Edgar, Chin, Chloe, Diver, Ruth, Hermann, Peter, Kovacevich, Alexsandra
Format:	Article
Published:	Oxford University Press / USA Jul2026
Subjects:	United Kingdom Families & psychology Health literacy Palliative treatment Interprofessional relations Social case work Pain Social support Psychology of caregivers Advance directives (Medical care) Social stigma Cognition Genetic testing Creutzfeldt-Jakob disease diagnosis Medical protocols Prion diseases Creutzfeldt-Jakob disease Infection control Hydration Seizures (Medicine) Health care teams Symptoms
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