Beyond the Clinic: How Stroke Survivors Navigate Secondary Prevention Through Situated Agency.

Background: Secondary stroke prevention is critical to reduce recurrent strokes; however, stroke survivors' real-world engagement with secondary preventive care remains poorly characterized. Methods: We conducted a qualitative study to understand the barriers and facilitators faced by stroke survivo...

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Publicado en:Health Services Insights Vol. 19; pp. 1 - 16
Autores principales: Lee, Charlotte, Hwu, Hilary, Khan, Shoilee, Frankel, Lucy, Noor, Raza, Yu, Amy Y. X., Marwaha, Seema, Saposnik, Gustavo, Kapral, Moira K., Vyas, Manav V.
Formato: research tables/charts Journal Article
Publicado: Sage Publications Inc. 8/11/2026
Acceso en línea:Ver este registro en EBSCOhost
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      dt: 8/11/2026
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      pub: Sage Publications Inc.
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        atl: Beyond the Clinic: How Stroke Survivors Navigate Secondary Prevention Through Situated Agency.
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          Lee, Charlotte
          Hwu, Hilary
          Khan, Shoilee
          Frankel, Lucy
          Noor, Raza
          Yu, Amy Y. X.
          Marwaha, Seema
          Saposnik, Gustavo
          Kapral, Moira K.
          Vyas, Manav V.
        affil: Daphne Cockwell School of Nursing, Toronto Metropolitan University, Toronto, ON, Canada
      sug:
        subj:
          Stroke Patients Canada
          Survivors Psychosocial Factors
          Recurrence Prevention and Control
          Preventive Health Care
          Health Services Accessibility
          Immigrants Psychosocial Factors
          Nursing Home Residents Psychosocial Factors
          Socioeconomic Factors Evaluation
          Human
          Male
          Female
          Middle Age
          Aged
          Aged, 80 and Over
          Qualitative Studies
          Descriptive Research
          Sampling Methods
          Semi-Structured Interview
          Videoconferencing
          Interview Guides
          Audiorecording
          Data Analysis Software
          Descriptive Statistics
          Funding Source
          Canada
          Middle Aged: 45-64 years
          Aged: 65+ years
          Aged, 80 & over
          Male
          Female
      ab: Background: Secondary stroke prevention is critical to reduce recurrent strokes; however, stroke survivors' real-world engagement with secondary preventive care remains poorly characterized. Methods: We conducted a qualitative study to understand the barriers and facilitators faced by stroke survivors in the Greater Toronto Area, Canada. Adult stroke survivors with low or moderate disability, who had a first-ever stroke in the year prior, were recruited from five stroke prevention clinics. Semi-structured interviews were conducted in three different languages. Recordings were transcribed, and the transcripts were coded and analyzed using interpretive descriptive methodology. We compared experiences by immigration status during coding; overlapping patterns led us to present integrated themes and note where intensity differed. Results: Twenty-five stroke survivors (40% women, mean age 70.3 years) were interviewed. We demonstrate how actions typically framed as patient behaviour were shaped by, and in turn shaped, broader structural and relational conditions, which we interpret through the lens of situated agency. We identified seven core themes: (1) Self-reliance as a default mode of recovery; (2) Gaps in understanding of stroke risk and prevention; (3) Barriers to engaging in preventive health behaviours; (4) Intersectional vulnerability in system navigation; (5) Family and social networks: source of strength or silent gaps; (6) Structural assumptions about self-management; (7) Desire for dignity and agency. Discussion: Stroke survivors' engagement with stroke preventive care is shaped by external circumstances and the ways they act within and respond to their contexts. Using a situated agency framework to design interventions could improve engagement and reduce stroke recurrence.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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