Future of International Spinal Cord Injury: Perspectives for Policy and Practice Implementation of the International Spinal Cord Injury Cohort Study.
Background: The International Spinal Cord Injury (InSCI) Community Survey is the most comprehensive global data source describing the lived experience of persons with spinal cord injury or disease (SCI/D) living in the community. By collecting standardized, self-reported data across countries and he...
| Publicado en: | American Journal of Physical Medicine & Rehabilitation Vol. 105; no. 9; pp. 844 - 850 |
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| Autores principales: | , , , , , , , |
| Formato: | review Journal Article |
| Publicado: |
Lippincott Williams & Wilkins
Sep2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=196191315&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 196191315 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 08949115 44N jtl: American Journal of Physical Medicine & Rehabilitation issn: 08949115 maglogo: N pubinfo: dt: Sep2026 vid: 105 iid: 9 pid: 5086 pub: Lippincott Williams & Wilkins place: Baltimore, Maryland artinfo: ui: 196191315 196191315 196191315 10.1097/PHM.0000000000003008 196191315 ppf: 844 ppct: 6 formats: tig: atl: Future of International Spinal Cord Injury: Perspectives for Policy and Practice Implementation of the International Spinal Cord Injury Cohort Study. aug: au: Bickenbach, Jerome Pacheco Barzallo, Diana Gross-Hemmi, Mirja H. Engkasan, Julia Escorpizo, Reuben Middleton, James W. Noonan, Vanessa K. Stucki, Gerold affil: Swiss Paraplegic Research (SPF), Nottwil, Switzerland sug: subj: Professional Organizations Spinal Cord Injuries Organizations Spinal Cord Injuries Psychosocial Factors Spinal Cord Diseases Psychosocial Factors Implementation Science Health Inequities Needs Assessment Attitude to Health Social Inclusion Professional Practice, Evidence-Based Psychosocial Functioning Environment Health Care Reform Health Policy World Health Organization Human Rights Psychological Well-Being Social Participation Quality of Life Change Theory ab: Background: The International Spinal Cord Injury (InSCI) Community Survey is the most comprehensive global data source describing the lived experience of persons with spinal cord injury or disease (SCI/D) living in the community. By collecting standardized, self-reported data across countries and health systems, InSCI operationalizes the World Health Organization's concept of functioning and provides a 360-degree perspective on health, participation, and social inclusion. Objective: This paper adopts a prospective perspective and examines how InSCI data can be implemented to inform practice and policy. It explores how InSCI can support the development of evidence-based Theories of Change (ToC) to guide implementation strategies addressing unmet needs and inequities experienced by persons with SCI/D. Methods: Building on findings from the first 2 waves of the InSCI survey, conducted between 2017-2019 and 2022-2024, this paper synthesizes methodological principles for implementation, situates InSCI within contemporary implementation science, and examines real-world applications of InSCI data at the national and international levels. Results: InSCI provides a unique evidentiary foundation for ToC development by integrating biomedical, personal, social, and environmental dimensions of functioning. Its comprehensive data model enables identification of priority gaps, formulation of realistic implementation pathways, and definition of measurable indicators for monitoring change. Existing national applications, including the Swiss National Strategy for Spinal Cord Injury, demonstrate the feasibility of translating InSCI evidence into coordinated policy and system-level reforms. Conclusion: InSCI is uniquely positioned to guide evidence-informed implementation of practice, programs, and policies for persons with SCI/D. By aligning with emerging global initiatives—particularly those led by the World Health Organization—and by grounding implementation in the concept of functioning and human rights, InSCI can support meaningful progress toward full inclusion, participation, and long-term wellbeing of persons living with SCI/D. pubtype: Academic Journal doctype: review Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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