The European Organisation for Research and Treatment of Cancer Quality of Life Group: Past achievements and future priorities in patient-reported outcomes in oncology.
As the EORTC Quality of Life Group (QLG) approaches its 50th anniversary in 2030, this paper reflects on the group's development and outlines strategic priorities emerging from its January 2026 strategy meeting. Its more than 1400 current members from 43 countries work to support that patient report...
| Publicado en: | European Journal of Cancer Vol. 245 |
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| Autores principales: | , , , , , , , , , , , , , , |
| Formato: | review Journal Article |
| Publicado: |
Pergamon Press - An Imprint of Elsevier Science
Sep2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=196389252&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 196389252 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09598049 1VW jtl: European Journal of Cancer issn: 09598049 maglogo: N pubinfo: dt: Sep2026 vid: 245 pid: 2410 pub: Pergamon Press - An Imprint of Elsevier Science artinfo: ui: 196389252 196389252 196389252 10.1016/j.ejca.2026.116961 196389252 ppct: 1 formats: tig: atl: The European Organisation for Research and Treatment of Cancer Quality of Life Group: Past achievements and future priorities in patient-reported outcomes in oncology. aug: au: de Ligt, Kelly M. van der Weijst, Lotte Arraras, Juan I. Bredart, Anne Eichler, Martin Giesinger, Johannes M. Husson, Olga Holzner, Bernhard Kuliś, Dagmara Oerlemans, Simone Rogge, Alizé Pe, Madeline Sodergren, Samantha Van Hemelrijck, Mieke Reijneveld, Jaap C. affil: Department of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, the Netherlands sug: subj: Neoplasms Therapy Neoplasms Psychosocial Factors Patient-Reported Outcomes Cancer Patients Psychosocial Factors Quality of Life Evaluation Questionnaires Anniversaries and Special Events Meetings Survivorship Diffusion of Innovation Research, Medical Implementation Science Health Policy Stakeholder Participation Oncologic Care Leadership Commitment Patient Participation ab: As the EORTC Quality of Life Group (QLG) approaches its 50th anniversary in 2030, this paper reflects on the group's development and outlines strategic priorities emerging from its January 2026 strategy meeting. Its more than 1400 current members from 43 countries work to support that patient reported outcomes (PROs) are measured rigorously, interpreted meaningfully, and valued consistently throughout the cancer care pathway. Since the introduction of it's core questionnaire (EORTC QLQ-C30) in 1993, EORTC QLG measures have become the most widely used in cancer research worldwide. As the cancer care landscape becomes increasingly complex, we highlight the QLG's ongoing impact and long-term sustainability, with the aim of inspiring other international research and oncology networks. We summarise key developments to date, including the design of its modular measurement strategy, whereby core questionnaires are complemented by additional modules and items from the Item Library. Subsequent initiatives have focused on enhancing the relevance and usability of measures in cancer clinical trials, increasing measurement flexibility to support a broader range of purposes including survivorship, economic evaluation, and routine clinical care, and facilitating outcomes interpretation. Our future work will both sustain the legacy of the past 45 years and shape the next era. We outline ongoing developments within the group and the wider research landscape that underscore the need for a clear future strategy, structured around six pillars: Innovation, research, methodology, and implementation; Policy, stakeholder management, and global outreach; Leadership and funding; Internal collaboration; People development; Patient engagement. [Display omitted] • The EORTC QLG a special interest group for quality of life research in oncology. • Its mission is to ensure that cancer patients' quality of life remains a priority. • This paper highlights past and future efforts to sustain the QLG's mission. pubtype: Academic Journal doctype: review Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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