Developing a culturally appropriate education program for caregivers and families of persons with dementia in India using the modified Delphi technique.
Purpose: Adoption of rehabilitative interventions for dementia care is limited in India and is attributed to a poor understanding of dementia among caregivers. Conventional interventions target the primary caregiver and overlook the broader family unit. The study aimed to develop an education progra...
| Publicado en: | Disability & Rehabilitation Vol. 48; no. 18; pp. 5969 - 5987 |
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| Autores principales: | , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Sep2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=196440410&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 196440410 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09638288 B73 jtl: Disability & Rehabilitation issn: 09638288 maglogo: Y pubinfo: dt: Sep2026 vid: 48 iid: 18 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 196440410 192191584 196440410 196440410 10.1080/09638288.2026.2639943 196440410 ppf: 5969 ppct: 18 formats: tig: atl: Developing a culturally appropriate education program for caregivers and families of persons with dementia in India using the modified Delphi technique. aug: au: Bangera, Kshama Marmstål Hammar, Lena Acharya, Vinita A. Dsouza, Sebestina Anita affil: Department of Occupational Therapy, Manipal College of Health Professions, Manipal Academy of Higher Education, Manipal, India sug: subj: Program Development Culture Caregivers Education Family Education Dementia Patients India India Human Snowball Sample Purposive Sample Semi-Structured Interview Surveys Delphi Technique Field Notes Interview Guides Readability Evaluation Questionnaires Data Analysis Software Descriptive Statistics Vignettes Checklists Thematic Analysis Qualitative Studies Caring Task Performance and Analysis Conversation Problem Solving Needs Assessment Dementia Rehabilitation ab: Purpose: Adoption of rehabilitative interventions for dementia care is limited in India and is attributed to a poor understanding of dementia among caregivers. Conventional interventions target the primary caregiver and overlook the broader family unit. The study aimed to develop an education program for caregivers and families of persons with dementia. Materials and Methods: A focused literature review informed the preliminary draft of the program. Fourteen panelists participated in the modified Delphi that included semi-structured interviews in Round 1 and survey questionnaires in subsequent rounds. Results: The preliminary program was based on available literature from developed countries with individualistic cultures. In Round 1, panelists raised concerns that the program's instructional content, high reading demands and didactic approach may not be suitable for India's diverse family systems, collectivistic values and resource constrained settings. The program was modified by incorporating case vignettes representing different culturally appropriate care scenarios and family living arrangements. The delivery was modified to be more personalized, interactive and conversational with activities and guided practice tasks. In Round 2, consensus was achieved (S-CVI/Ave = 0.96) for the modified program. Conclusion: The developed culturally appropriate family-centered education program may be a meaningful, feasible, and promising approach to support dementia rehabilitation. IMPLICATIONS FOR REHABILITATION: Developed and validated a culturally appropriate family-centered education intervention for caregivers of persons with dementia in India. The developed family-centered education intervention uses limited resources and would be feasible and sustainable in resource constrained settings. Involving the family unit may support the adoption of rehabilitative interventions for persons with dementia in settings that otherwise prioritize medical management. Involving family members in dementia education may reduce the burden of primary caregivers involved in rehabilitation of persons with dementia. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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