The Many Faces of Engagement: A Scoping Review of Paediatric Patient and Family Engagement in Clinical Care, Education and Research.
Background: Engagement of paediatric patients, families and caregivers in clinical care, health research and health education is increasingly recognised as essential to improving the quality, relevance and equity of health services. Despite growing interest in its application across clinical care, r...
| Publicado en: | Health Expectations Vol. 29; no. 4; pp. 1 - 21 |
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| Autores principales: | , , , , , , , , , , , , , , , |
| Formato: | pictorial research systematic review tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Aug2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=196480426&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 196480426 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Aug2026 vid: 29 iid: 4 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 196480426 196480426 196480426 10.1111/hex.70756 196480426 ppf: 1 ppct: 20 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: The Many Faces of Engagement: A Scoping Review of Paediatric Patient and Family Engagement in Clinical Care, Education and Research. aug: au: Allemang, Brooke Dehmardan, Ida Maini, Pranshu Buchanan, Francine Novak, Ivona Carbone, Vanessa Kablawi, Dalya Li, Lin Nguyen, Linda Courtney, Kimberly Cunningham, Jessie Lewis, Iveta Southward, Carla P. Cleverley, Kristin Munce, Sarah Toulany, Alene affil: The Hospital for Sick Children, Toronto Ontario,, Canada sug: subj: Education, Clinical Patient Care Clinical Research Patient Participation Evaluation Family Psychosocial Factors Hospitals, Pediatric Human Canada Scoping Review Medline Embase Cochrane Library CINAHL Database Funding Source Checklists Gray Literature Protocols Health Screening Feedback Collaboration Diversity, Equity, Inclusion ab: Background: Engagement of paediatric patients, families and caregivers in clinical care, health research and health education is increasingly recognised as essential to improving the quality, relevance and equity of health services. Despite growing interest in its application across clinical care, research and education domains, engagement practices remain poorly connected, inconsistently defined and unevenly implemented. A system‐wide understanding of engagement is needed to clarify common principles, highlight gaps in practice and ensure that approaches are aligned across domains—conditions that are necessary for coherence and equity. Objective: To identify the commonalities and distinctions between paediatric patients and family engagement in clinical care, education and research contexts in paediatric healthcare institutions. Methods: Following PRISMA‐ScR guidelines and the Joanna Briggs Institute framework, a scoping review was conducted across five databases and eleven grey literature sources. Eligible articles involved paediatric patients (0–24 years old), families or caregivers involved in engagement activities related to clinical care, research or education. Three youth and family partners contributed to all review stages, including protocol refinement, screening, extraction, interpretation and manuscript preparation. Results: Of 16,817 records screened, 113 studies met inclusion criteria. Commonalities emerged across domains, including the predominance of small engagement groups, the frequent use of co‐development and feedback roles for partners, and a shared tendency to operate at the Collaborate level of the International Association for Public Participation Spectrum. The application of equity, diversity and inclusion principles in engagement and the impacts of engagement were rarely described across domains. Notable distinctions identified included differences in terminology, evaluation practices and reporting of engagement. Discussion and Conclusion: This review identified commonalities and distinctions in how paediatric engagement is conceptualised and enacted across clinical care, research and education, including in partner responsibilities, engagement methods and outcomes. Inconsistent reporting, variable evaluation practices and imprecise terminology reduce comparability across contexts and limit the transferability of engagement practices across the domains of paediatric clinical care, research and education. Patient or Public Contribution: This review was co‐designed and performed in collaboration with three youth and family partners who actively participated across all phases of the research process from conceptualisation, study selection and screening to data analysis and interpretation, and manuscript preparation. pubtype: Academic Journal doctype: pictorial research systematic review tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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